luglug, when your new GI said your DX was ulcerative colitis, did he specficially say ulcerative or just colitis? The reason I ask is because with CD, it can affect your colon (as it can affect any part of the GI tract from mouth to anus) but when it's affecting your colon docs will often just throw the word "colitis" out there, even though they should be specifying it's crohn's colitis. As a result, many patients get confused and then think their DX has changed from CD to UC when infact it hasn't but usually due to doctors wording incorporates misunderstanding to the patient.
It happend to me early on, I knew I had crohn's (have the perianal crohn's skin tags to prove it) but it's been constant in my colon, when I changed GI's (one of the 3 times that I did that) this one GI imparticular told me after he scoped me that I still showed signs of "colitis" and I told him, that no, I don't have colitis, I have crohn's and then he explained to me that yes it's still crohn's but because it's affecting my colon it's referred to as crohn's colitis, so of course I said to him, well you only said colitis, you didn't specify crohn's colitis, and then I told him he should be careful with his wording because he could be confusing alot of patients by not being specific. I had already had CD for almost 10 yrs when this happend and that was the first time I had heard the term crohn's colitis and then learned shortly afterwards that there are 5 subtypes of CD (which you can google) that give specific names and explanations to the 5 main different areas CD basically affects different parts of the GI tract.
CD can also affect more than one area at a time, for instance, when I first got sick it was on my anus with perianal crohn's skin tags (which is where my CD actually started, it most commonly starts in the small intestines) as well as my rectom (proctitis), colon (crohn's colitis) and my TI.
Best thing to do is communicate as much as possible with your doc and if you're ever unsure, keep asking for clarification until you completely understand what your doc is telling you.
It's very rare, but aprox 2% of IBD patients do have both UC and CD.
The major distinction between telling the difference between UC and CD is the pattern of inflammation is distinctive between the 2, with CD there is a skipped pattern of inflammation (healthy tissue in between inflamed....patches) but with UC the entire area will be inflamed with no skipped pattern/patches of inflammation...find out from your doc what the pattern of inflammation was that he saw.
BTW, crohn's doesn't necessarily shorten life expectancy either...many,if not most patients live a long life with either CD or UC, its not considered a terminal disease either because it's not necessarily life threatening, just life altering and even very severe patients often live a very long life with having crohn's (or UC).
Best thing for you to do is clarify with your doc about what your pattern of inflammation was at your last scope...good luck.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~