In the US it's not up to the consultant whether or not one opts for surgery; it's up to the patient. I have heard many stories of where the colon doesn't look bad but the patient is miserable. In my own case I had a stubborn area, about the size of a dime that would not respond to treatment. Everything else was fine but that one spot ruined my life so I opted for surgery and never regretted it.
You are never too young or too old for surgery for UC. If you have no quality of life and have exhausted the medical treatments you are willing to try then you can have surgery. For those of you contemplating it would be wise to get ahead of the game and at minimum have a surgical consult.
Suebear, i am from the UK and unfortunately don't have that choice. My consultant is also my surgeon here! She is really nice, but because i am intolerant to all meds, she isn't sure what to do with me.
Waiting lists are longish here, i have had to wait 6 weeks for a flexible sigmoidoscopy, which is bad when i needed it it straight away, as i am in a really bad flare, and can't treat it with anything! She said she needs to look up there to see what she is dealing with, she told me that i would be hard pushed to find a surgeon, that would operate on me without having looked up there first.
I am just feeling so desperate, my life is ruined, and i just don't know if i am ever going to get it back. Surgery scares me to death, i have never had an operation, and i have never had general anesthetic. I am worried i will end up being allergic to the anesthetic or something as i seem to be intolerant to all medicines, even calcium tablets give me diarrhea!!
Ulcerative colitis for around 15 years untreated (Im am 28 years old now)
Asacol tablets and enemas,Steroids, Pentasa, Mezavant, Sulphazine, 6MP to name a few do not work for me. I do not want to try remicade. Possible surgery in the future.
I am on no meds, now looking into probiotics, turmeric Vitamin E enemas and fecel transplantation. Getting food allergy tested 23.1.10
In a bad flare since Christmas, which I need to get under control fast as it is taking over my life.
My biggest concern BOWEL CANCER :O(