Posted 3/10/2010 11:03 AM (GMT -6)
Feel free to post in, and thanks for reading!
I had a hospital appointment yesterday, which was scheduled around 6 months ago. Basically when I left I felt sooo down, I was told the only options left for me where Remicide or Humira, failing those then my only option is surgery. I have always been reluctant to have the surgery. I would like to fight this disease and get into remission again. I was in remission for almost a year then it all went wrong after a flu jab! - That trouble free year was great.. I felt like a new person, personally I'm not sure If I'm a strong enough person to have the surgery/pouch and or bag..
OK.. I felt down, but the past few weeks things have improved for me.. I was told to stop the predinsoline (as I was on them for over a year) which was good getting off those. Basically every time I was tapering down I seem to get a VERY large mouth abcess (5 times in total).. and then I had to stop and take an antibiotic, this went on for roughly the whole year.. pred = abcess = Stop the Pred, & take an antibiotic (To clear the mouth abcess) try the pred again etc . It was a messy process. I think that since I came of the prednisoline, Ive had no abcess which means I dont need an antibiotic. Things have certainly calmed down on the western front (Or rear..lol) Albeit I am also taking pentasa and sometime predfoam & for the past few weeks I I have also been taking probiotics (You guys seem to think they made a difference. - Last few months things were bad, toilet 10-20times a day, this month 5-10 times a day!.. Today for example I have only been to the toilet 3 times, once for BM and twice for gas & mucus - Both very little at each time. - It seems to be getting better, could things just improve If I continue as I am? - Excuse my ignorance, Ive only been in remission once and that was because of the IV therapy.
Is there anything I could try to kick things along a little more?.. Ive cut out alcohol to see if things improve, I try eating healthier (Although neither of these seem to previously have any imapct on my UC).
Take care, and thanks for reading my post.