Posted 4/27/2010 9:25 AM (GMT -7)
My daughter is one of those with fulminant colitis, and we have finally gotten her into a good solid remission. She is taking a lot of immunosupressives, however, more than I feel comfortable leaving her on long term. She does Remicade every 8 weeks now, and she also is taking Imuran 100mg. daily. Has anyone been on both and started to wean off one? Her GI says the Imuran would be the first to try and reduce, mainly b/c Remicade is hard to start back up on if you quit for awhile (and the insurance approval nightmares!). I'm worried about the risk for rare cancers, it is higher when taking the two together.
I think the Remicade helped her intestinal mucosa heal, but the supplements and the dietary changes we have made I think are what is keeping her in the remission, not the remicade.
Has anyone crossed the bridge of quitting TNF blockers because they felt they would do ok without and don't like the risks?