Well, it was basically useless. They just weren't really listening to me and didn't really understand what was going on and said that low cortisol levels wouldn't cause those problems (even though online it said it does) and that my levels aren't really that low anyway. They said I really didn't need to be on 10mg of Prednisone because that is in excess of what the body produces. They are having me wean to 7.5 for a couple of days, then 5 for 3 weeks, then go in for another test.
The doctor was just weird...she was asking me questions about
whether my back is straight and whether I have stretch marks but didn't seem too concerned about
my actual symptoms. She also didn't bother to read the stack of notes my surgeon sent over explaining my surgeries and all the problems I have had.
She also said I should not have been prescribed the Florinef, because it is used to treat low blood pressure when your cortisol is low (I did have low blood pressure--today it was 110/70, so it's not like it's getting too high). That's not how the drug was explained to me, but oh well.
I just looked up what a normal cortisol level is and 6-23 in the morning is normal. Mine was 5.8, so it IS low but not low enough to matter, I guess
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma
12/30/09 Takedown too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Attempted Fistula Repair(couldn't find it)
3/30/10 Takedown again
Imodium (8/day), Questran (3/day), Flaygl 500 mg (3/day), TPN 12 hours/day, Prednisone 10 mg (1/day), Florinef .1 mg (1/day)
Post Edited (pam222) : 4/28/2010 2:51:43 PM (GMT-6)