I'd appreciate that. They have to give you some sort of valid reason since judging by your meds, you've exhausted all the alternatives other than surgery. I've been flaring since around the same time as you Dec '09 (off and on--more on than off) and I've tried everything and nothing is working anymore. I'm back on 40mg of Prednisone for the past week and I should be a lot better by now and I'm not.
Sorry to hear you're doing so poorly. You sound exactly how I am. I've been dealign with this flare up since dec/jan and been on prednisone since Jan/Feb and I just want off. I am on 6mp now. Have you been pushed toward 6mp before Remicade? I hope the 6mp helps. I had to go back up to 40mg but I am down to 20mg again and worried I will start getting worse. I can't wait to be off this stuff, I feel so fat and gross!! I was on 40mg for ~2 weeks in order to get back to "normal". I thought I would NEVER get better this most recent relapse. After a week at 40mg, with NO improvement, I was seriously feeling like NOTHING would help! It was a terrible feeling. Keep thinking positive and don't rush to get off the higher dose until things improve.
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!