I have had mild rectal bleeding my whole life and was diagnosed with proctitis as a teenager.
Age 30, after quitting smoking, I started a 3.5 year flare that resulted in proctocolectomy/ileostomy/JPouch. In Aug 2006 was a few cm - few months later 15cm - few months later 20cm - few months after that 25cm - in the end it had reached over 60 cm - was severe and was still spreading and for that time I never achieved remission.
Now I am getting used to my JPouch and feeling healthy again!
Diag proctitis 97 - major flare and extension to left sided colitis Aug 2006 - present.
I bled every day from Aug 2006 (I quit smoking in June 2006) to Jan 2010.
Imuran (Azathioprine) game me liver damage. LDN no luck. Asacol and mesalazine enemas - seemed to make worse. Lots of Prednisone :( No luck on drugs!
JPouch, total colectomy and ileostomy (part 1) completed Jan 2010 :)
Takedown (part 2) April 15 2010.
UC no more!!!