Hello everyone! It's been a while since i last dropped by. I am in need of some advice from u all.
I was dx w/ UC after the birth of my first child. Tried all the different meds, they didn't work, blah..blah....until i got on to 6mp. I hit a nice remission for about 1 1/2 yrs. Then i got pregnant w/ my second child. When i went into labor at 25wks, i stopped all my meds incase i had a micropreemie who needed me to breastfeed (which i was told i could not do on 6mp).
Fast forward 3 yrs, i have not gotten back on meds since having my second child. I have not had any flares (as defined by blood, mucus). I have had alot of trouble with chronic direhea which lands me in the hospital due to dehydration. EVERY time, after CT, bloodwork, stool samples, i am always told the same thing, "It is not a flare of UC", maybe a gastritis, ect.
Today i woke at 3am, and have been in the bathroom no less than 25 times today. I saw my GI today and was really pressured to get back on my meds. It makes no sense to me if i am not having a UC flare, then why the meds??? They said today that since i am showing systemic symptoms (rashes, joint pain, ect) that they believe that i have involvement of the right side of the colon (which i was originally dx w/ left sided uc.) And that since i have only had flex sig in the last two yrs, that we must be missing something.
does anyone see this as right? I am on a host of meds, including a HRT (hormone patch) due to a total hysterectomy 18mo ago. I can not imagine how bad Pred (40mg) is going to make me feel since im still soooo out of whack w/ my actual hormones. I really do not want to go back on meds since they can't prove to me that it is indeed UC and maybe not just my immune deficiency attacking my GI track....
what would u all do, are there any questions u can think of for me to ask my doctor? I don't think i have ever been this confused about my UC than i am now.....Thanks for reading this!!!