I just got back from a sigmoidoscopy and wondered if anyone here has had any sort of similar experience.
Flash back to April 2010. I had my first ever sigmoidoscopy.
Inflammation and bleeding ulcers in rectum, about the final 4 cm of rectum. Rest of sigmoid colon looked great.
I was given prescription for canasa suppositories. I took it for about 4 weeks and during that time, my symptoms ranged from hard bloody poop to diarrhea to pretty normal looking, but it varied day to day, and I started feeling really blah, crampy, and dizzy.
Since the canasa didn't seem to agree with me and my symptoms didn't go away, I was given another prescription for hydrocortisone suppositories which I took for about 4 weeks and during that time I pretty much had the same range of symptoms (a couple of days were completely symptom-free, some days I had really soft poo with blood, most days my poo was kinda hard and lumpy and still bloody.
So at my last GI appt last week, he decided to have another look inside me before deciding what meds to try next.
Today I had another sigmoidoscopy (about 4 months after my last one).
My rectum (or at least the final 4 cm that had been inflamed and bleeding before) looked perfectly normal. The next 6 or so inches above my rectum in the sigmoid colon was red and specked with tiny ulcers. He took several biopsies. It didn't look really inflamed, but had quite the appearance of smoothish pink with lots of little red dots sort of clustered all over my colon.
My GI said it didn't look totally like typical UC, but it also didn't look totally like typical Crohn's disease either. He said the pathologist processing the biopsies might have about a 20% chance of diagnosing UC of Crohn's, because of some difinitive pathological difference that shows up in about 20% of cases. He said it's possible that the suppository meds had cleared up the inflammation in the rectum, but that inflammation could have contined to spread upwards while the rectum healed... but there's still the possibility that it might turn out to be CD instead. (ack! I am so freaking out about this possibility !!)
I now have 2 new prescriptions for rectal meds. If the inflammation and bleeding goes away, that's great. If not, I'll be back in for the full colonoscopy to see where else inside me is screwed up.
Has anyone else out there had a healing/inflammation pattern like this? Can you tell me more about it? Or any other words of wisdom are also greatly appreciated! Thanks!
Ulcerative Colitis Diagnosed April 2010 at age 37
Female, mom of 2
Tried Canasa, made things worse. Tried Hydrocortisone, no change.
Trying the "Specific Carbohydrate Diet" ... Started 11 June 2010
Supplements: multivitamin, calcium, fish oil, vitamin E, vitamin D, probiotics, turmeric, bromelain, boswellia.