Posted Yesterday 9:45 PM (GMT -6)
I am a late 20s guy with a job in the Midwest whose father over the last seven months, who lives in the east, has developed what has been diagnosed as UC. Over the last month or so, his condition has deteriorated to the point where he has been in the hospital for about a week now. He had 45 BMs in the last 24 hours (approx. 3x/hr most of the day, every two hours or so while sleeping), and is suffering from dehydration and suspected kidney failure as a result of his inability to retain water. He has a catheter in secondary to the kidney suspicions that, along with the IV hookup, makes the runs to the bathroom especially excruciating. I post this from his basement between days at the hospital. There does not appear to be any improvement.
I was totally unfamiliar with this disease before the beginning of the year symptom onset. I have no idea how anybody could live with what he is going through now. He gets IV steroids, oral steroids, suppositories, and the like, and is still just BMin' like crazy.
What advice do people who have endured/watch people endure such symptoms have for those going through it now? I feel like the doctors fail to appreciate/differentiate his individual symptoms and instead treat him very generically with, what I am sure, are symptoms that have helped in the past. Any help? Thanks.