Lynn and Vick, I can't say as I blame you to opt for surgery.
I have an appt with a surgeon this week too. I have a slightly different diagnosis (diverticular colitis) but the colazal, antibiotics and enemas are not getting me well. I have been feeling systemically sick with joint pain, fatigue, occasional fevers and all. I am curious as to what the surgeon will recommend but I am actually feeling so bad, I am ready for surgery.
I've been dealing with this for 2 years with no remission of much duration. Sometimes I'll have a good week or a few good days but that's it.
I am a bit concerned b/c my ASCA test for crohn's is positive but we'll see what he says about that. So far, my biopsies just show garden variety colitis with diverticular disease. It's been hell though.
I think I would opt to have a pourch or bag if I had a UC diagnosis. Gladly at this point. It sounds like there is an adjustment with the ostomy but it sounds like most do not regret getting their colons out.
Best of luck to you and God bless. I'll be looking for your posts to see how it is going for you.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, omeprazole for reflux.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Currently on flagyl and it is helping. Have apt with surgeon soon