ever feel tingling in arms/legs/hands/feet/lips?

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Veteran Member

Date Joined May 2007
Total Posts : 528
   Posted 8/18/2010 11:04 AM (GMT -7)   
Hi. I have been getting some tingling in all sorts of extremities - arms, legs, hands, feet, lips, knees - on and off for awhile now, and recently it has been worsening. It could be that this has nothing to do with UC, but I wanted to see if any of you have ever experienced this? If so, thoughts? I don't have any changes to my drug regimen, so I would be surprised if it was a mild allergy, but I guess that is possible too? Thanks for any responses.
Pancolitis dx 3/07
2 Lialda/day
150mg Imuran/day (was steroid dependent, reached this dose 9/07.)

Veteran Member

Date Joined May 2008
Total Posts : 574
   Posted 8/18/2010 12:38 PM (GMT -7)   
Hi I have tingerling in my rt hand lower arm and bottom lip sometimes it goes all down my leg and into my foot I also have a very painfull heal which is worse after resting like you have had this quite a while maybe it is related.
  Diagnosed 22.5.08 with Lft sided U/C
 Asacol 800mg x2 twice daily
 co codamol 30/500x2 when needed
 buscopan 20mg when needed
 6mp 50mg daily

Regular Member

Date Joined Jan 2009
Total Posts : 185
   Posted 8/18/2010 1:08 PM (GMT -7)   
i get alot of twitching, sometimes with or without pain and anxiety not sure if its UC related either ut didnt notice it until i had UC...also noticed a change in vision....

Forum Moderator

Date Joined Apr 2004
Total Posts : 23549
   Posted 8/18/2010 4:50 PM (GMT -7)   
Look this up on Google because it sounds like a vitamin and/or mineral defiency. I have heard this before but for the life of me, I can't remember what the defiency is. When was the last time you had your blood drawn?
Moderator-Allergies/Asthma, Co-moderator-UC and Alzheimer's
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Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 8/18/2010 10:30 PM (GMT -7)   
To all of you experiancing tingling/pins & needles sensation, go get your B12 checked out, this is the first signs of permanant nerve damage due to lack of B12....and be especially careful with having those sensations in your legs, it can be a sign of dangerously low levels of potasium...see your docs, don't ignore the signs your body is sending you.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Elite Member

Date Joined May 2003
Total Posts : 29798
   Posted 8/18/2010 11:56 PM (GMT -7)   
Definitely get your blood levels checked, especially B12, potassium, sodium, D.

Imuran can possibly cause your symptoms as well as anxiety, nerve impingement, dehydration, thyroid imbalance...etc.

You need a thorough check-up.

*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 2000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Veteran Member

Date Joined Jul 2009
Total Posts : 523
   Posted 8/20/2010 12:31 PM (GMT -7)   
quincy said...
Definitely get your blood levels checked, especially B12, potassium, sodium, D.

Imuran can possibly cause your symptoms as well as anxiety, nerve impingement, dehydration, thyroid imbalance...etc.

You need a thorough check-up.

Also have your blood glucose levels checked, I noticed your signature said "was steroid dependant", and steroids, especially prednisone can trigger type 2 diabetes. It usually resolves after a few months of being steroid free, but not always. Mine didn't.
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