This forum is a real revelation to me!
I am a 36 year old woman, diagnosed with UC in April 2010. I live in Guatemala, and we have limited access to certain meds. From what I 'm reading here, I feel like the advice and course of treatment my doctor is leading me on is from the dark ages!
I started with 3 mg of Pentasa (mesalamine) which only worked for about
a month. From then, about
mid May on, I've spiraled downward. My doctor pressured me from the beginning to start on oral steroids, specifically Prednisone, to control the flare, but I refused.
After a very debilitating vacation with my husband and kids in which I visited EVERY single bathroom in all 4 Disney parks (I had up to 12 evacuations a day, some of them disastrous :( ) I upped my Pentasa to 4 mg a day, plus a suppository at night, but no good.
A week ago I started on the steroid Prednisone (started with 30 mg, down to 25 this week, and 20 next week). My doctor basically promised me that all would be well with the steroid, that my colon would heal within three weeks, and I could just do maintenance with the Pentasa: but this hasn't happened. Half way into the course of steroids I feel very little improvement.
MY QUESTION IS: have any of you used steroids to calm a flare up? How soon did you feel the effects? How long did you take them for? (hey- that's three questions, sorry
Also: I'm curious as to why so many of you are using fiber therapy (like Citrucel). I'm avoiding fiber like the plague!
And: Probiotics? It only makes sense. Any particular brands anyone can suggest so I can order it online?
Thanks for reading!