Posted 9/19/2010 10:36 AM (GMT -7)
Hi - Glad they have helped!
For me, it's good to wait about a week after things are "fine" until I start tapering. Very often impatience backfires; I figure even though I don't "see" symptoms, the tissue is not completely healed, so a too-quick taper might backfire. (not a good image when talking about enemas, lol)
I tapered exactly as you described. I've done two a day a few times, actually.... I think I've gone to every other one in the morning first, then after a week or so every third one in the morning for a week, then every fourth one for a week.... until it's one per week, then I drop it in the morning. (I believe I've done the Rowasa most mornings instead of the steroid, but not necessarily every morning... )
Then, after I'm off the morning steroid enemas, I repeat the process with the evening one.
Ultimately my goals have been to drop the morning enema completely and be on Rowasa twice a week for maintenance.
I've used the steroid enemas a lot, but I've never asked about doing them as maintenance. My understanding is that some of the steroid does get into one's system, and also can thin the rectal walls, so... not so great for maintenance. However, flaring isn't so great either - so I'd be curious what your doc says if you ask!
It's great you're doing well!
Co-Moderator, UC Forum
Age 54. Diagnosed UP 1983, UC 1986
Asacol - down to 13 pills/day,
almost off Cortenemas. Rowasa 2x a week.
Metamucil - 2 doses/day
VSL#3DS, Multivitamin, Calcium and D
homemade yogurt each day
Son, 17, dx pancolitis 2007, in remission