Before we did the colonoscopy last thursday, both my GI and myself had no clue that it would show ulcers in the ileum. He had mentioned that we could try entocort (sp?) but it was mainly used for crohns and not colitis . Maybe that is something that he will look into to treat this. All I know is that I don't want those ulcers to get out of control because they can eventually cause quite abit of issues.
5ASA don't work, serum sickness reaction to imuran, remicade didn't work, canasa never worked......Even though I use proctofoam I don't notice much difference.
Prednisone is my best friend and my worst enemy put together in a little pill :)....but it is the only thing that works (thats why I was pred dependent for 8 months last time) This time I have severe stomach pain above my belly button and my GI thinks its being caused by the prednisone....so taking 20 mg of omeprazole (not working). Can't eat meals only a couple bites of stuff at a time or I vomit.
looking online for other prescriptions to try. Sometimes the internet is better than asking my GI because I see a whole bunch of opinions not just 1. Plus Im better informed to discuss things with my GI. My family practice doctor told me I know way more than him on this disease.
ulcerative proctitis diagnosed October 2007
As of 11/11/10 - I have inflammation and ulcers in my terminal ileum (ileitis). Now saying I have indeterminate colitis since I have UP and now ulcers in my ileum. Could have crohns...who knows!
30 mg of Prednisone as of 11/12/10
Proctofoam twice a day
Meds that don't work/don't take anymore:
Post Edited (lovemyboys09) : 11/13/2010 11:05:22 PM (GMT-7)