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Veteran Member

Date Joined Oct 2009
Total Posts : 2820
   Posted 12/12/2010 8:23 PM (GMT -6)   
Anyone have trouble with decaf coffee and UC?

Veteran Member

Date Joined Jun 2009
Total Posts : 2009
   Posted 12/12/2010 8:37 PM (GMT -6)   
lol jk... I just don't like it. I've only had it a few times; it's more the heat and richness that get me, not the caff.
21yr old female diagnosed with UC in 2005 at age 15
125mg Azathioprine
Just got over flare, but now stuff is happening....
Also: asthma, acid reflux, and Raynaud's Syndrome

Elite Member

Date Joined May 2003
Total Posts : 30180
   Posted 12/12/2010 9:37 PM (GMT -6)   
not with coffee in general. Only Starbucks or anything that smells like it make me nauseated.

*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Regular Member

Date Joined Nov 2010
Total Posts : 123
   Posted 12/12/2010 10:03 PM (GMT -6)   
I drink a small cup of decaf about 5 days a week and I'm fine with it.
Diagnosed UP July 2010
Canasa (Salofalk) 1/2 to 1 supp daily
Supplements: Arise and Shine Probiotics, Udo's Choice 3-6-9 oil blend, fresh wheatgrass juice every morning,
5,000 IU vitamin D
Vegetarian for the past 15 years

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 12/12/2010 10:21 PM (GMT -6)   
I find my poo is not as solid. I no longer drink it.

Veteran Member

Date Joined Jan 2010
Total Posts : 5659
   Posted 12/13/2010 5:49 AM (GMT -6)   
Lately I've been testing decaf out since I want to eliminate my green tea with caff. My results so far is that instant decaf=bad for my colon. I've tried 2 brand names of instant decaf. I just tried Organic decaf beans ground at home and no problems but it's only been one day. However it's so expensive that I'll probably stick to decaf tea bags lol.

The reason I went with organic is to avoid sulfites and other chemicals that go into the decaf. process.

Update: 2 days of organic decaf beans and no problems. So it's the instant decaf my colon dislikes.

Post Edited (imagardener2) : 12/13/2010 5:08:26 PM (GMT-7)

Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 12/13/2010 6:42 AM (GMT -6)   
If you really want coffee, Folger's makes a decaf coffee that is easy on the gut. Forgot the name of it though - Gut soother seems to come to mind but I may be wrong. I love my coffee and I drink regular. It bothers me a bit in the mornings but it helps get things going for me because some days I have issues with constipation.
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis/GAD - Klonopin (.25mgs)

Veteran Member

Date Joined Mar 2010
Total Posts : 640
   Posted 12/13/2010 11:59 AM (GMT -6)   
I need to have my coffee fix, regular and strong.  It also helps me by regulating my poop.  I usually will have a cup in the morning and if I have to go I go in the morning.  If I don't have to go then usually I am good until the evening or the next day.  I love the richness and aroma of coffee.  It's hard for me to be friends with those that don't love it.
39 Year Old Male, Dentist
Dx: Ulcerative Colitis 1996 via colonscopy and biopsy.  Pancolitis with chronic and moderate inflammation.
Started UC around 92.
Past Meds: Asacol and occasionally Prednisone
Have had 6 colonscopies throughout my hx with UC.
Current Meds: Imuran, started with 200 mg and recently lowered it to 150 mg
Most recent colonscopy 2009 after 6 months of Imuran, colon is 90% healed
Currently in remission

Veteran Member

Date Joined Mar 2009
Total Posts : 1439
   Posted 12/13/2010 5:56 PM (GMT -6)   
Meh, I down coffee like it's water and am fine (decaf AND regular), however I'm in remission. I would never do this in a flare. However decaf didn't seem to irritate me when I was flaring.
Heather, 23 year old grad student
Ulcerative colitis from rectum to mid transverse colon, diagnosed 3/6/2009, symptoms for 2 years beforehand
In remission! <3
Currently on lialda 4x/day, azithioprine 150 mg/day
Allergies: penicillin, sulfa, bee stings, environmental (especially ragweed!), OTC meds as needed

Veteran Member

Date Joined Jun 2010
Total Posts : 3010
   Posted 12/13/2010 7:20 PM (GMT -6)   
Coffee in general irritates the gut. I do better with real coffee than I do with decaffeinated.

Ugh Just Ugh
Veteran Member

Date Joined Jan 2010
Total Posts : 1004
   Posted 12/15/2010 9:39 AM (GMT -6)   
I can't drink coffee at all. :o(
Current Meds: Remicade (5mg/kg), Imuran (50mg), Rowasa (4g nightly).
Past Meds: Canasa, Hydrocortisone Enema & Supp. Oral Mesalamine Intolerant.

Regular Member

Date Joined Nov 2010
Total Posts : 167
   Posted 12/15/2010 6:28 PM (GMT -6)   
For me, decaf coffee is like alcohol free beer. I just don't get it.
Age 43
1200 mg Canadian Asacol twice a day
20 mg Omeprazole once a day

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 12/15/2010 7:21 PM (GMT -6)   
Noah_Bodie said...
For me, decaf coffee is like alcohol free beer. I just don't get it.

It's the amount of caffeine. Decaf coffee still contains caffeine even though the amount is very small, depending on the coffee. I can't drink regular coffee. It gives me way too much energy. I'm zooming, can't slow down, and get the shakes.

Regular Member

Date Joined May 2010
Total Posts : 73
   Posted 12/17/2010 2:49 PM (GMT -6)   
Noah_Bodie said...
For me, decaf coffee is like alcohol free beer. I just don't get it.

Some of us like coffee for the taste?

Having said that, I can't drink it, regular or decaf. It's one of my triggers. I even tried a cup (organic decaf) after months of no issues and I had diarrhea for 2 weeks from that one cup. Not something I can tolerate at all and I miss it terribly :(

Sergey P.
New Member

Date Joined Apr 2016
Total Posts : 1
   Posted 4/5/2016 7:45 AM (GMT -6)   
I had troubles with decaf after I found out on my health. It contains coffeine too! Now I prefer green tea.

(URL removed)

Post Edited By Moderator (iPoop) : 4/5/2016 7:55:24 AM (GMT-6)

New Member

Date Joined Mar 2016
Total Posts : 14
   Posted 4/5/2016 8:15 AM (GMT -6)   
I drink my coffee in the morning knowing it's going to get things moving within a half hour. I limit myself to one cup.....but as long as I have a half hour to let the "magic" happen it seems to make my day go better.

I've stopped drinking coffee and found that my UC seemed to get a bit worse (weird). I should also mention that decaf doesn't work well for me and I stick with the same regular eight o'clock coffee.

Post Edited (Joker) : 4/5/2016 8:19:31 AM (GMT-6)

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