Hey guys! I want to give you an update, sorry it took so long!
SHORT VERSION: I had emergency surgery because I was septic and had a total colectomy with ileostomy. Planning on getting the j-pouch in April.
So I took your advice and looked up a bunch of stuff online, and scheduled an appointment with a surgeon on Monday (1/3/11) as well as a upper endoscopy and lower endoscopy for the that Thursday.
Here is where it gets interesting! On Sunday morning I start throwing up. I don't think too much of it, I figured maybe it was the tylenol or something. That afternoon I develop a fever of 102.6. My mom called my GI doctor and he told us to go to the ER. I, of course, dragged my heels because I hate the ER.
Anyway, we get there around 6:30 PM and they schedule me for a CAT scan. I'm tachycardic at 125 BPM. They FILL me with fluids and run a bunch of blood tests. My mom and I wait and wait and wait. She leaves around midnight. At about
1:30 I go into the CAT scan. Results are as expected, a severely inflamed colon.
So I keep waiting, I'm talking to some doctor or another where the overwhelming urge to go to the bathroom comes over me. Like, I had to go NOW. So I sprint to the bathroom where (TMI) I have a ton of diarrhea that is pretty much water. Feeling better, I go back. Once I am hooked up to the machines, the nurse swears because my BPM has spiked to 140 and my BP is 80/40. I start shivering. My temperature has risen to 104. I get the rigors and they do a billion blood tests on me. I can't stop shaking.
A doctor comes by and tells me that they are going to move me to a special room in the ER (later I found out that it was some sort of intensive care ward) where there will be more nurses around to check in on me. Everybody was so calm, I never suspected anything.
So they move me, and these nurses start sticking electrodes all over me, telling me that they are doing an EKG. I didn't think much of it, I was on pain medication. Then they tell me that they are going to insert a catheter. When I question them, they tell me that they want to measure my fluid output. It didn't hurt, surprisingly.
So I am lolling in my room, delirious from pain medication and fever, when they tell me that I might have to get a blood transfusion. It's early morning at this point. Then it dawns on me. I need to call my parents. I am very, very sick. I call my mom, no answer. I call my dad and he is waiting for the train. I said "NO YOU CANNOT WAIT FOR THE TRAIN I AM VERY VERY SICK!!". He decides to drive down, but he is about
45 minutes away.
I'm panicking a bit at this point. I can't contact my mother. A surgeon comes in and tells me that I may have surgery that day. She sort of explains what is going on. Another surgeon comes in soon after and tells me that I will be having surgery in the next four hours. She says that my colon wall is so thin that bacteria is leaking out into my bloodstream. I am becoming septic.
At this point, I am freaking out, but hoping that my parents will be there in time. I call and call my mom to no avail. I call her wife and tell her what is going on. Luckily she works nearby and leaves to come over the second I told her what is going on. She promises to get into contact with my mom.
Of course, the icing on the cake is when the next nurse came in and told me that I am on the waiting list for the Operating Room RIGHT NOW. Another surgeon person comes in and has me sign a sheet saying that I know I will be having surgery and that I understand the risks. I ask her a few questions, but what is there to ask? I need to have this surgery or I will DIE.
I'm in tears, trying to prolong the time before I have to go up to the OR. My mom's wife gets there right as they start wheeling me up to the room. She's in tears, but says she finally got into contact with my mom. The nurses had taken all my possessions by then, including my phone. Dad gets there and finagles his way to me soon after. We're waiting on my mom. Her wife is on the phone with her, the nurses are directing her to the waiting area, not to me. Finally, she manages to get up to me as the anesthesiologists are explaining what is going to happen. She must have driven like a madwoman to get there on time.
Since I was so full of fluids, they had to cut my ring off. I kiss my parents goodbye, and they give me a drug to help me "relax". I don't remember anything after that until I am getting a blood transfusion after the surgery, but that is still very fuzzy.
I also got pneumonia afterwards because when they took out my breathing tube I inhaled a bunch of fluid in it. They thought I had a pulmonary embolism, but luckily not! I was on oxgen for a while, though.
I had a total colectomy with ileostomy, and in April I am getting the reversal surgery and J-pouch. I was only in the hospital for a week, and it is 2 weeks today since my surgery. It was all such a blur, and I was so unprepared. I am still getting used to it.
21 year old female
diagnosed with UC July 2007, had symptoms since January 2007.
Had an emergency total colectomy with ileostomy 1/3/11.
Planning on j-pouch surgery in April.
Post Edited (kcolwell24) : 1/19/2011 10:48:40 PM (GMT-7)