I have a feeling that the mesalamine enemas will help you a lot. I think it's pretty odd that you were given steroid enemas instead of them at first, actually. I have pancolitis (meaning the whole colon is affected) and I firmly believe that the mesalamine enemas help a LOT at treating the part of the colon they do reach. When I was diagnosed, my GI started me on Asacol alone at first. After a week, I noticed a VERY small improvement, and he added the enemas (he didn't prescribe them at first b/c I was in such a severe flare he didn't think I could hold them long enough to help). I noticed a BIG improvement very quickly. Now, I know they don't reach the whole colon, but I know they do a fantastic job at treating the portion they do reach.
I'm also using the enemas twice weekly to maintain remission. There are several studies that show that patients who use enemas twice weekly, in addition to oral meds, stay in remission longer than those who only use oral meds. I have not run across any studies that show no benefit to enemas.
As for success stories, I was in a pretty severe flare when I was diagnosed (15-20+ extremely urgent BMs/day plus big weight loss), and I've been in a rock-solid remission for over a year and a half now.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin. Used prednisone (starting dose 40 mg) to get into remission.