So after having gallbladder issues for over a year I decided to finally go get a Hida scan which showed my gallbladder was not functioning. I am an RN at this hospital so I went to see one of my favorite surgeons who wanted me to get an egd/colonoscopy just to double check everything before my lap chole. Once the testing was done he said that I had some proctitis so he recommended that I take 2 weeks worth of hydrocortizone enemas. These in my opinion were horrible. It made me feel plain awful and it probably was not as effective as it could be because at the beginning I could barely hold them in for 30 min. The last week of the treatments I found that if I divided the doses and did half and half I was able to hold one half for about
30 min then expel it and then apply the other half and hold it all night... after this my surgeon called me back with my biopsy results... on Valentines Day... Ulcerative Colitis. I finished my 2 week course of enemas and had no symptoms for 2 weeks. He did not put me on a maintainance drug bc he wanted to see how long it would take my body to show symptoms again. A few days ago I began to see mucus in my stools again which was my number one problem during this whole thing... so today I began Asacol 800mg TID.
Prior to all this my symptoms were generally normal stools with mucus mixed in and then I would have periods of urgency where I would literally have to sprint to the bathroom and have horrible gas with almost explosive at times mucus with no stool at all. After this went on for about
2 months straight I knew something had to be wrong so I went to the dr to find my gallbladder sucks as well.
I have never had diarrhea with this and only have had blood tinged mucus a handful of times...I also have the typical crampy type pain in my left lower quadrant. My kind of UC is Ulcerative Proctitis which I hear is the best UC diagnosis but I am still scared to death and even though Yes I am a nurse my family has no "health care sense" and seem not to get that this is FOREVER! I just turned 24 and the idea of a forever chronic diagnosis is overwhelming!
SO the plan now is to get my gallbladder out in May since that can also be causing some of the mucus/bloating/gas problems that I am having. I would like to be able to just be able to tune into my UC symptoms.
SInce this is all new to me I havent been able to really hone in on any triggers to what makes me flare up... Just really need people to talk to that understand all this... :)