I am also a fellow parent and I think a 10mg taper a week is much to high of a jump.
My daughter was on 40 mgs for a few weeks and when we tapered it was by 2.5mgs
she went from 40 to 37.5 to 35- something like this. I think at the most a 2-3mg
drop per week or so.
It took about 3 mo for the taper to end. At the same time we transitioned on to 6-MP. It all
went smoothly and we never saw blood again.
It seems like Sulfa is not working (?)- has your son tried other ASA's?
You need to be a a maintenance drug for his UC or he will go right back into a flare.
Please try to find a Dr that you like and trust.
Have you used Florastor to make sure the C-diff stays away? That is a very effective probiotic
especially where c-diff is concerned. Do some research on it.
Don't let the bleeding get too out of hand or you will find yourself going way back up on the
Ask the Dr if he is Prednisone dependent at this point so he can get on a more effective UC
Daughter, age 10. Diagnosed with UC 10/2009
Unable to take mesalamines. Finally off Prednisone...never again :(
Current regimen that is working-