Posted 4/11/2011 5:17 PM (GMT -6)
After deciding surgery would be better than the severity of my uc, I went in march 10 for step one, total colectomy and temp ileostomy. 8 days later after suffering from obstruction from twists and adhesion and organs flopped over my ostomy, I got the takedown surgery. Things looked good, and bowels were unkinked. And after ng tubes, xrays, ct scans, catheter in my neck, and white blood cells count at 40,000, they ruled out infection after numerous tests.
My bowels finally moved and stoolcame out. Then tons of diarrhea came out per day and I was still dehydrated with iv fluids. After a month I am still in the hospital battling dehydration with bolus fluids, TPN, and oral intake.
I have assumed reformed adhesions causing a partial obstruction with cramping, spasms, gas, bloating, and fatigue. I am only able to eat a handful of bites until I am bloated and full but after pacing myself, my stools are thickening more than watery. I am on imodium to reduce output and encouraged to walk to stay healthy. I can walk pretty well now but this schizophrenic partial obstruction plus diarrhea/dehydration is such a drag. Surgeon says time will improve it, otherwise another surgery is considered after a month to six months have elapsed. I get to go home on tpn if my dehydration can be controlled and diarrhea improves (it started at 6liters/day and was about 4 liters yesterday).
Since I was getting so much fluid via my Picc line, I have been swelling with edema, my legs and rest of my body is retaining water. My electrolytes are closer to stable so maybe things will pick up...