I had my first infusion of remicade in July 2009. I wasn't pre medicated my first infusion. The max speed they go is 150 and when I got to that top speed. I got chest pains and dizzy and I felt like I was going to pass out. They gave me bendryl and tylenol and slowed down the infusion. I was still having the problems so they stopped my infusion. I got through maybe half my bag. We tried it again but I was pre medicated with tylenol and hydrocrotisone(sp?), i get very dizzy and tired from the bendryl so we use that instead. I also get my infusion very slow. I don't go above 65. I get there at 9 and am done at about 2:30-3:00. I still got the chest pain but it was managable, we figured out after alot of heart tests,etc. that it was heartburn(a side effect) from the remicade. So, I'm on prilosec twice a day for that. It works but every once in awhile I get heartburn really bad still and then I take tums and I'm okay. I also get a rash about two weeks after my infusion so I take zyrtex once a day all the time. I was at 5kg from July 2009 every eight weeks until Aug. 2010 and they upped me to 7.5 kg every eight weeks. This is when I started getting joint pain. I live with it but it does hurt sometimes. I feel like an old lady at times. The reason I was upped to 7.5 kg is because when they did a scope in jan. 2010 my colon wasn't healing from the remicade. The remicade helped my symtoms after about three infusions. I was going D about 10-15 times a day with reallly bad urgency and alot of accidents. I was horrible when I started the remicade. Since the third dose I go about 4 times a day with no accidents since starting it(knock on wood lol). I am still very tired. This is my number one complaint. So, when they did the scope in jan. 2010 and said my colon wasn't healing they wanted me to go off it. I said give me some more time. I don't want to go off it I feel so much better and i have a life now. She said I will give you 6 months. Well, i had a scope done in Jan 2011 and my colon went from severe uc thoughout to no uc on my left side and mild inflammation on my right. So, I would give it time. It has worked wonders for me. I can go places with my kids and go for walks and car rides. I also can figure out when I will have to go to the bathroom, mornings are bad for me, once after lunch and usually I don't go from lunch until the next morning. Once in a while I will go once after supper. I can pretty much eat anything. I do notice that coffee and milk products give me bathroom issues but I usually go once after eating or drinking them and I am fine. I still worry about the bathrooms (like when we went on a trip to Chicago, walking around downtown and going on boat rides) but I was fine. It is more in my head. I like my infusions also because I do homework, take a book and sleep. It is my me time(pretty bad huh?). I'm telling you this about the side effects because while I do get them I live with them because they are better than not being on the remicade. I have been on it almost two years now and it has been a god send. I hope it works for you. Sorry for the long post. lol
On remicade since July 2009, Upped my dose in August 2010 to 7.5kg
Currently taking:Calcium Citrate, Vitamin D and Vitamin B12 shot(monthly, myself), Zinc, Magnesium, Zyrtex, Prilosec, Fish Oil, Levothyroxine, and a Multi Chewable Vitamin
Had a scope on 1-11 and my left side is completely healed and my right side has some mild inflammation and ulcers. The remi is working!!!!!