Posted 4/23/2011 4:28 PM (GMT -7)
notsosicklygirl: Oh my goodness, I get that as well!! I'm so tired all the time and it drives me nuts cause I used to have the energy of an 8 year old, but now I crash after 2 hours of school, if I even wake up in the first place. I love martial arts so much, its encouraging to have someone with a similar love and condition keep perservering =)
That is interesting, I never thought about anxiety having an effect, even though that makes sense. I am diagnosed with an anxiety disorder (mostly social), but my GI does not know. I do notice that when I am placed in an uncomfortable social situation, I do feel the need to run to the bathroom.
Another similarity! As a child, I had such a strong fear of using the bathroom, I would hold it in until I had an accident. Which lead to many many uti's and lots of specialists. Ah, I have the 20 minutes bathroom trips as well. Sometimes it doesn't feel like its all gone, so I'll continue to wait, which really interrupts my class time and makes my teachers curious.
I have never heard of Asacol or sulfasalazine from a doctor. I'm on my third GI cause the first two didn't know what to do with me anymore and I keep switching from pediatric to regular because I'm right on the cusp. I've tried gluten free and dairy free and been tested for allergies and sensitivities, and nothing besides watermelon, cantelope, and stuffed furniture came up. None of which I eat.
LC is an autoimmune disease where the immune system produces too many lymphocytes which then attack the colon and cause inflamation. Its a form of micro. colitis. Its pretty rare, especially in people under the age of 50, so everyone's at a loss. Also, it generally goes away on its own in 2 weeks, but mine has been 9 months with a ton of medications. I've had two colonoscopies with biopsies and both say LC is there. My momma always told me I was difficult O=) Not sure about the 6mp or Remicade, I just had a capsule endoscopy to see if there were ulcers in my small intestine cause I've been bleeding, but my colon is clean of anything that would cause it.
Beth75: Haha, that's how I thought of it! Excercise seems to fast track the bm's!! Yes, public restrooms can be very uncomfortable, it seems like everyone will listen and judge you even though they don't know that you have a actual disease. Ah yes, mapping out bathrooms. Never thought I would know every bathroom on the route to wherever.
Runawaybride3: I have tried that, but for some reason I still have to go to the bathroom. Not entirely sure why. Oh goodness, yes, that happens to me too, it gets stares... And the concentration, especially on tests, is certainly not easy while worrying about your bowels! I do also have some anemia, that very well might be it. I will try those, thank you!
Thank you all for your replies and support!!
17 year-old female
Dx: October 2010 Lymphocytic Colitis
Tried: Entocort, Prednisone(60 mg then tapered, never again), Pentasa, Bentyl, Lomotil. Pepto Bismol, Immodium, Dicychlomine, Cloestrymine
Currently: Prozac, Creon (not working)
Trying 6-mp and/or Remicade soon, rather nervous!
As much as this stinks, it could always be worse.