Hi. Me again. Sorry for all the posts / questions. This is the first site I"ve found where people suffer from both sacroilllitis and colitis / crohns or IBS. So have questions of how you deal with it.
I've gone through lots of tests recently and my rheumatologist has ruled out ankylosing spondylitis and cartlidge deterioration at this time (but will be monitored for both going forward) and so my diagnosis is "just" sacroiliitis. I also had colitis when I was 15. (Had my colon removed so now have a Jpouch). I'm now 38.
To manage it, he prescribed celebrex....max 1 a day as he's aware of my stomach history and jpouch. At first I took maybe a pill twice a week, suffering through the regular pain, but scared of causing a flare up of pouchitis or other stomach issues. Then I had a bad flare up and have been taking it daily for the past 3 weeks.
So my question is....do you all take meds on a daily basis or only when needed? And what meds do you take? Regular NSAIDS or a prescription? Anyone take celebrex? How is your stomach when you take the meds. So far I'm ok, but am worried that over time, will have issues.