I'm Chrissy. I'm 38 yrs old and the mother of three. I was formally diagnosed with Ulcerative Proctitis yesterday by my GI doc. Although I'm thankful that I do not have cancer, the though of having a life long illness that could potentially get worse, is really frightening me.
This all started with my entire family getting a stomach virus that lasted for about
two weeks. Everyone got better but me. I started having more urgency to go, frequent trips to the bathroom as well as passing blood and mucous with and without BM. I had a colonoscopy two weeks ago that revealed through biopsy, "idiopathic chronic proctitis". The biopsy is clear to state that it is suggestive of IBD but per the biopsy, there was not enough evidence to label it as such. However, after having my follow up appt with my doctor yesterday, he feels this is "most likely" a variant of ulcerative colitis-its just in about
5cm of my rectum. The rest of my colon looked great-no polyps or inflammation.
The doctor had given me a sample of Rowasa after I left the colonoscopy. I used it that night and was fine. But my prescript
ion was filled generically and after I used the first generic one, I had a bad side effect. My body felt like I had the flu and my legs felt so sore. I called the doc and he switched me to cort enema to use for two weeks. My doctor said likely that this will be chronic and that he just wants to see how I feel when I'm finished with the meds. I'm used the cort enema for 9 days so far and I've had less frequency of BM's and no urgency. I'm still having some bleeding during bowel movements but not nearly as much. I asked the doctor if this is where I'm supposed to be for this far into the course of enemas and he said yes. I thought the enemas just treat the symptoms but that we need something to take to help our immune systems. I already told him I will only take prednisone as a last resort.
In my situation, what is the most typical thing a doctor will prescribe after the initial 2 wks of cort enema? Are there any people who only need to use the enemas or does everyone need to be on oral medication of some kind? Is it normal for doctors to have a wait and see approach to this?
Thanks for your help