I started remicade in July 2009. I'm going on two years on it. It took aboout four to five infusions for all my symptoms to go away. I was going about 10-15 times a day. I was diagnosed with severe UC thoughout my whole colon. I am down to about 4-6 a day. I have been at this since about my fourth dose. I can hold it for awhile if I have to go. I still have to find a bathroom right away but I can hold it until I find one. Before remicade I had alot of accidents. I had a scope in March 2010 and it showed no healing of my colon. My doc wanted to take me off it and I said to give me more time. I'm glad I did. I had a scope in jan. 2011 and my left side is completely healed and my right only has mild inflammation. So, it took awhile for my colon to heal.
Remicade has given me my life back. I was getting to the point of never leaving the house and being really stressed out when I did. Now, I can do things and go places. I usually go to the bathroom about two to three times in the morning. (this is my worst time). Then once after lunch. I usually don't go the rest of the day. sometimes, I will go once after supper, depending on what I eat.
My first infusion I had chest pains. so, now I'm premedicated with tylenol and hydrocrotisone before my infusion. I also get my remicade very slowly. I get there at 9 and don't get done until 2:30ish. I also get heart burn(this is what the chest pain is) so I'm on prilosec. I will also get a little rash so I'm on zyrtex, daily. Otherwise, I'm good.
I wish you the best of luck. I hope it works for you.
Oh, when the remicade doesn't work anymore. I will try humira and then surgery unless something else comes out.
On remicade since July 2009, Upped my dose in August 2010 to 7.5kg
Currently taking:Calcium Citrate, Vitamin D and Vitamin B12 shot(monthly, myself), Zinc, Magnesium, Zyrtex, Prilosec, Fish Oil, Levothyroxine, and a Multi Chewable Vitamin
Had a scope on 1-11 and my left side is completely healed and my right side has some mild inflammation and ulcers. The remi is working!!!!!