Just wanted to share with you a question and answer from another forum I am a member of, perhaps it might be of some help to you.
Q: My husband is in the throws of a terrible flare. We are at the brink of having to decide if we should have surgery.
He has UC that mostly is located in the rectum but when he has a flare it spreads throughout his colon.
He has been on prednisone 3 times in the last 4yrs(two 4months stents; and then a 9month stent) Prednisone seems to be the only med that brings him out of a flare. He has tried the following drugs with little to no help: Canasa, Asecol, Asecol HD, Cortifoam, 6MP, and Remicade.
Is LDN something we should try?
A: I hope your husband can try the LDN. I know he's tired of being sick and sometimes surgery sounds pretty good. I am thankful every day I didn't go that route. At one point I begged the doctor for surgery. I had fissures and fistula. Extreme pain for years.. I couldn't take the Asacol and other medications either. They made me much worse. Now I'm doing the LDN and several types of probiotics. I'm not on SCD but I know what foods bother me now. Dairy is a bad one for me. Anyway, there is great advice on this group. I'm doing so good now. I never thought I would have a normal life ever again with Crohns, but it's possible!
There are so many other success stories with the LDN. It took quite a while to work. It was one step forward and two steps back for several months. It's all full steam ahead now!!
Here's the Dr. Jill Smith study on LDN:
Here's the Penn State research done by Dr. Jill Smith with LDN and Crohns Patients.
For anyone thinking about trying LDN for their Crohn's or UC, here's the published study on it.
Joanna, I feel for you. And pray you make the right decision - I know it must be very very tough.
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!