Wow! That's no way to treat someone! I too was in tears over starting Pred...especially since I also have a history of being very sensitive to these drugs! ...but now the choices are down. Pred or Remicade...which is the lesser of the two evils? I figure Pred would be short term and if it works, get me out of this flare so I can continue on LDN! Can't do Remicade and LDN as they cancel each other out.
I started Pred this past Sat, June 4th. I think the hardest thing was getting over the first dose..consider my first dose of Asacol left me bed ridden all day! Now I'm learning to take it one moment at a time. Learning how to deal with the side effects. amazingly enough the Hydrocortisone enema hit me fast and hard....it seems the Pred it taking it's time. I'm now day 6 and my ankles are just starting to swell up, but my stools seem to be improving. Also learning to deal with the acid built up in my tummy at night.
It's a tough call and people shouldn't be so insensitive...but it all due to their ignorance. Yea...I hear of Pred being use for lots of stuff but not at our dose level! It's up to you to make the call and your family should be supporting you either way. The important thing is to get out of a flare asap. The longer you're in the harder it will be!
Have you research other options such as Entocort, Budesonide enema/suppositories/LDN or get a full work up at Mayo Clinic? I've done all that and it helps to have th full understanding of your current condition and choices.
Just read the posts...so you started. Did you stop yet? Sounds like you got forced into taking it. That's the worst thing anyone could do! You got to go in with the right mind set. Please drop us a post and let us know how you're doing. I'll be praying for you!!!
Diagnosed July 2010
flaring as Jan 2010
As of 5/25/2011 procitis is now pancolitis!!
Pred 40mg, started 6/4/2011
Transdermal LDN 4.5 mg 4/23/2011
Energy Multi-Plex / Vital-Zymes Complete / Microgestin (birth control), Magnesium for leg cramps
Post Edited (Peace&Harmony) : 6/9/2011 6:13:13 PM (GMT-6)