So, after 17 years of having first 'Ulcerative Proctitis' and then progressing to Ulcerative Colitis, the doc at Mayo just told me I do not have either of those! I am shock, how is that even possible? I'll be ecstatic if I don't have to have another colonoscopy for 20+ years but I just find it so hard to believe. Especially since Mayo was the first place to diagnose me with what they termed at the time 'Ulcerative Procitis'. They can't explain why 17 years ago I had what appeared to be horrible flares with tons of bleeding that were on and off for 2-3 years. Just that my colonoscopy shows no indication that I have active, or inactive inflamatory disease. [clip]
Has anybody ever heard of anything like this? I'm guessing not but at the very least it was good to vent!
I'm not sure whether to scream here of joy or suggest calling for an appointment for second opinion. It's The Mayo Clinic we're talking about
. How could they ever have been wrong?
You displayed proof is factual information that verifies a conclusion of UC, backed up by biopsies. Then the verdicts is just the opposite. Totally crazy situation. Weird disease.
I'd had a 'similar' situation when I was about
thirty years old. I underwent the colonoscopy overseas a few times in different countries, and the procedure showed not only clean colon but no indication of any UC activity ever. I was in complete remission without any drugs or supplements for about
15 years. Could not have been more happy or confused. It's easy to accept that you're cured - finally.
I thought that I was cured for sure, until the focker raised its ugly head again.
Hopefully your final diagnoses remains for the rest of your life.
All the best, MNBeachgal.