I can relate to be a parent with a daughter on UC. My daughter is 16 and has been trying to get in remission since Oct 2010. She just had her 4th remicade infusion. They also up the dose from 300 to 550 ml. Which is going from 5mg to 10 mg per liter. Confusing. She is titrading down on the predisone. From 40 mg to 30mg.........and down we go. I think we have worn out that drug and our finish with it. The prescript
ion strength VSL is great because it is a 70 dollar copay(1 month) versus the over the counter price (355.00 i month). We are also using the enamas (messeline) spelling doesn,t count. But to see my daughter smile while we are tubing on the boat or ride in a horse show the day after her infussion is like the master card ad......PRICELESS!! I just wanted to let you know that there are parents that are going through the same thing......day after day. I pray that you will also have some good days along with many bad days. Sorry about
the broken sentences but my wife usually does the typing.
Remicade 4 infussions
Predisone almost done for good.
Enamas of every flavor.....messiline steriod
VSL I think is the least invasive
Asecol for good measure.
And assorted vitemins.