Eh, I'd prefer to manage my UC with meds that are working extremely well for me, and allow researchers to figure out the cause of UC in the meantime. If you don't want to call what I have going remission, that's fine with me. I really don't care what it's called. I just care that I feel great and don't worry about
the fact that I have UC. Besides, by the clinical definition, my UC is in remission.
I do believe that there is a gut flora component to UC, but I also believe that UC is actually not one disease, but a group of diseases with many separate causes, that all happen to have very similar symptoms. That's why some people have no luck with meds, why some can manage with diet and supplements, and why some manage with fecal transplant, etc.
Since what I'm doing works, and works well, at least for the time being, I think I'd be foolish to quit my meds.
Since you had pancolitis, maybe you're just going to have to stay on a higher dose of meds for a while to make sure your inflammation is totally quiet before you begin to taper. Also, if you want to lower your oral dose of mesalamine, maybe think about
Apriso. I'm on it, and it's a much lower daily dose of mesalamine than Lialda or Asacol, at the maximum dose. My GI said that Salix claims that since it dissolves more readily, a lower dose is effective for maintaining remission. Or something like that. Who knows...I'm just happy it works for me.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin. Used prednisone (starting dose 40 mg) to get into remission.