Ugh I HATE UC. It is so frustrating.
1 week of enema + suppository;
1 week just suppository; then everything pretty close to normal except still having urgency.
Stop all suppositories. feeling good for about 4 days. Then start having a few problems,
1 night suppository; next day good
the day after, awful, took several steps backward (boo)
Tonight: (debated whether to go back to enema or just suppository) decided to just do suppository
1st question: How do you wean off enemas/suppositories?
Ugh. I'm so sick and tired of all this. I know others can relate.
Diet: Mentally, is so tough. I think I tried to go back to my healthy diet (steamed broccoli) too soon. Which annoys me so much. I'm trying to keep my weight in check and it seems like all the foods I tend to eat to do so, I can't eat during a flare. and all the foods I try to stay away from I have to be eating during this flare. Can anyone relate?
I've had too many flare ups over this past 6months-1year. It is so frustrating. I just came to terms that my GI doc, doesn't know crap. So I'm working on choosing the next one. I write her to tell her I'm flaring and I'm starting enemas (first time); what should the plan be? Her response (same as everytime I am flaring) Well let's get blood work, and check stool sample for c diff. everytime. Never tells me how often to use enemas, etc. Never writes to check up. Only writes in response to my notes. I've been with her awhile now, but I still compare to a GI dr I had b4 her. (Had to switch bc insurance changed) I keep trying to find a way to see old dr. She was amazing. I loved her. She would listen to me, ask questions about consistency, how often, etc.
I HATE how UC dictates my life. Can't exercise outdoors away from bathroom. too scary. ETC.
really HATING UC right now. can you tell.
Wish I could go back to full remission, like I was for 3-4 years.
diagnosed Ulcerative Colitis, 2005
-tried various meds for a year
got started on Remicade 2006
prednisone during flares
methotrexate, folic acid, omega 3, biotin, probiotics, etc...
Exercise: 2hrs+ cardio
Diet remission: chicken, turkey, apples, steamed broccoli&carrots, protein bars, NO DAIRY, NO NUTS, NO BERRIES, NO CAFFEINE, limited sugar