I can't believe it is almost time! I don't even know what to feel anymore. I actually made it through an entire day without crying, so I am making progress! I know the reality will hit me HARD when we get to the hospital tomorrow.
I've been reading the boards and it seems SO many people have had complications with their ostomies/j-pouches. This scares SO much! It will destroy us if she goes through having her colon removed only to have more complications. I know I sound really negative...and I am...so much has happened in the last 3 yrs and none of it has been good. It is so hard for me to trust in the fact that she just might be HEALTHY and happy again. I'm afraid to get my hopes up. Of course I don't say these things to her, but I know she is cautiously optomistic also. She is handling things really well
I am so proud of her! It's only been a month since she got out of the hospital for her last flare and now here she is going back in for another week!
I have to call the hospital tomorrow morning to see what time they want us there, and then she will spend the night at the hospital doing the bowel prep I don't imagine either of us will be getting much sleep in the next 48 hours. I will give you guys an update on Friday. Please send lots of healthy vibes, wishes and prayers out to Children's Hospital in LA on Friday around 7:30 am
13 yr old daughter diagnosed UC 12/08
Just spent 8 days in Hospital due to flare & back on Pred :(
Headed for surgery 9/30/11
Remicade: 6/16/11, 7/1/11 and 7/25/11
previously on 6MP, Asacol, Lialda, Rowasa, Cortocoid
Pancreatitis 2/10 after being on Rowasa & Lialda
Husband dg'd Crohn's 2/09 at age 46 -
Remicade every 8 wks