Surgery went well

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Regular Member

Date Joined Jan 2009
Total Posts : 394
   Posted 10/1/2011 3:40 PM (GMT -7)   
Hi everyone
Paige had surgery yesterday! It was a really long surgery (almost 8 hrs) which I guess is common. She did great, no complications ans has pretty much been sleeping this whole time. She has an epidural for pain as well as morphine every 3 hours. The nurses at this hospital are so awesome! (Children's Hospital in LOs Angeles)

She had the colectomy done laparoscopically but she does have an incision at the top of her pubic bone (exactly like a c section incision) which we were told about, but I thought it was going to be much smaller. I had a c section with Paige and it was a really tough recovery, so I am concerned recovery for her will be harder than expected. Not one person I have talked to has this type of an incision...has anyone else heard of this?
13 yr old daughter diagnosed UC 12/08

Just spent 8 days in Hospital due to flare & back on Pred :(
Headed for surgery 9/30/11

Remicade: 6/16/11, 7/1/11 and 7/25/11
previously on 6MP, Asacol, Lialda, Rowasa, Cortocoid
Pancreatitis 2/10 after being on Rowasa & Lialda
C-Diff 6/10

Husband dg'd Crohn's 2/09 at age 46 -
Remicade every 8 wks

Veteran Member

Date Joined Apr 2010
Total Posts : 1353
   Posted 10/1/2011 4:12 PM (GMT -7)   
That's wonderful she's on the road of recovery!

I don't know any information regarding the incision, I apologize. But did the doctor talk about scarring at all with you?
22 · F · Ont, Canada
Inactive left-sided UC · Remission!
Asthma, seasonal allergies
March 2011 scope indicates 15% inflammation
Salofalk made symptoms worse
Imuran, 100 mg · Alesse · Folic acid, 5 mg · Multi-vitamin, Vit. B, C, D, Calcium
Avoids: red meat, alcohol, high fat, fried, salt, sugar, dairy
Can have: fruits, vegetables, white meat, wheat
Trial and error: Benefiber

Veteran Member

Date Joined Jan 2010
Total Posts : 5604
   Posted 10/1/2011 4:24 PM (GMT -7)   
That's great to hear your good news. Hope she just gets better and better in her new and improved life.

Veteran Member

Date Joined Jun 2010
Total Posts : 2275
   Posted 10/1/2011 4:25 PM (GMT -7)   
I am so glad the surgery went well and she is UC free!! Sorry I don't know too much about the incision :( Pls keep us posted on her progress.
2 Lialda/day  Rowasa nightly
Metamucil wafers

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 10/1/2011 4:58 PM (GMT -7)   
I'm glad to hear she's doing well! Keep us posted!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.

Regular Member

Date Joined Jun 2007
Total Posts : 364
   Posted 10/1/2011 5:16 PM (GMT -7)   
So glad to hear all is going well. I will continue to pray her recovery is very smooth. Update us when you can!

(((Hugs))) to you both!!

Mom of Son 20 UC dx at age 10, Lailda x4, Azasan 175 mg, Zyrtec D, Iron, Zinc, Protien Supplements.

Daughter 12 UC dx at age 8, Colazal x4, 6MP 25/37.5 mg, Culturelle, Iron, Zinc, Vit/Min.

Forum Moderator

Date Joined Dec 2008
Total Posts : 15419
   Posted 10/1/2011 6:27 PM (GMT -7)   
Thank you for the update. I am so happy she's doing well.

I don't know anything about incisions and surgery. This may be a question for the ostomy board.

Please update again when you can.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (50mg) + Pristiq (50mg) + Canasa (1g PM) + cerazette

Elite Member

Date Joined May 2003
Total Posts : 29856
   Posted 10/2/2011 12:35 AM (GMT -7)   
Wow, awesome to hear Paige's surgery went well. I hope her recovery goes smoothly and that she has no complications.

Let us know about the lower incision and why it was done. Maybe it was to remove the colon and prepare the lower area in preparation for the next step?

*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Veteran Member

Date Joined Feb 2011
Total Posts : 4530
   Posted 10/2/2011 4:25 AM (GMT -7)   
I had the c section style incision with my surgery and it healed up fine. I had it done lapo as well. They make that incision b/c that's where they removed the colon from. I really didn't have much pain from that site. Most of the pain I had was inside and the pain meds really do their job for that.

Glad to hear all went well!

DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

Veteran Member

Date Joined Apr 2009
Total Posts : 654
   Posted 10/2/2011 7:24 PM (GMT -7)   
Yay!!!! Yay!!! I am so glad everything went well.  Keep us posted. Hopefully this time next year everything will be behind you guys and you won't have to worry about any uc stuff again. smilewinkgrin
On remicade since July 2009, Upped my dose in August 2010 to 7.5kg
Currently taking:Calcium Citrate, Vitamin D and Vitamin B12 shot(monthly, myself), Zinc, Magnesium, Zyrtex, Prilosec, Fish Oil, Levothyroxine, and a Multi Chewable Vitamin
Had a scope on 1-11 and my left side is completely healed and my right side has some mild inflammation and ulcers. The remi is working!!!!!
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