Hi everyone, I am DESPERATE! I have not been in remission since 2008. My UC has become very severe since the beginning of this year. I have been on 40mg of prednisone since January, switched from Asacol to Apriso, started Cimzia injections in May, unable to take Remicaide due to a severe allergic reaction, referred to Vanderbilt for help, and I am currently sitting here in the hospital for my second time in two weeks.
Vanderbilt would like me to increase my Cimzia injections & start Methotrexate. I am suppose to have ANOTHER colonoscopy & EGD tomorrow or Tuesday. The doctors here just stare at me now when they come to exam me with bewildered looks on their face. I am physically & emotionally drained. I am at a point were I just can't take it anymore. I can't take the pills, injecting myself with meds that offer no help,pain, nausea, fatigue, & the constant disruptions in my life. I'm worried I will lose my job.
Here's my question/questions....When is it enough? We are looking into surgery. Removal of my colon with a J-pouch. I am 25yrs old, and I am so afraid of what this might mean for my young life, but I am at the end of my rope. Is their anyone out there who has had this surgery? I would love to here positive and negative feedback, and any other advice you have to offer.
I am sorry this post is so long. Thank you for your time!