I have been lurking here for quite some time and appreciate so much all of the great information. I want to
tell you about our experience with a naturopath.
My daughter was diagnosed with Crohn's in 2007 at the age of 16. Since that time the doctors are thinking it
more likely is ulcerative colitis. She was started on Asacol but she quit that when her hair started falling out.
They prescribed different drugs: Lialda made her worse and Apriso didn't seem to make any difference. She was hospitalized in 2009 with a flare but the pred and flagyl worked quickly to get her feeling well again.
She was not on any medication but last November she started another flare. This time the prednisone helped
somewhat but she was still having symptoms. She weaned herself off the pred in January because of the
side effects she was experiencing and was doing ok until her gi decided he needed to do a colonoscopy. The
prep for that procedure sent her into a horrible tailspin. She was going 20 to 30 times a day with bloody
diarrhea and sleeping on the bathroom floor. She had to have a blood transfusion. It was such a nightmare
because she refused to quit school, but we live close enough that she moved home and commuted.
Her gi had been pushing her to take remicade but she kept resisting, but she was so sick she started the
infusions. She felt better after the first infusion but she says she's not sure now if it is really helping.
I finally decided to take her to a naturopath in Seattle. At the first visit he took a detailed history
and started her on the following:
1 to 2 scoops MediClear Plus by Thorne Research in a smoothie 1 to 3 times a day
(she just blends it in almond milk because it tastes bad and she doesn't want to
ruin a smoothie) He said that she was not getting enough protein, esp at breakfast
1 scoop L-Glutamine powder by Thorne mixed with the MediClear
BCQ by Vital Nutrients - 4 caps three times a day
Ferrasorb by Thorne - 2 caps per day
Saccharomyces boulardii - 250 mg per day increasing to 500 mg
He ran a bunch of lab tests and gave us the option of testing for food allergies which we decided to do.
At the next appointment, he added DHEA15 by Thorne - 2 caps per day and told us to resume the fish oil
she had been taking. The next week he had the results of the food allergy test run by Us BioTek.
She is allergic to lots of foods, gluten, dairy, sugar, coffee, corn, on and on. We already knew that
gluten was a problem because we had a stool sample tested for gluten sensitivity by Enterolab.
Dairy is a problem for her because she is allergic to the casein, not the lactose.
So he started her on a gluten, dairy and sugar free diet. He said that most of his IBD paitients improve
on a gluten-free diet. And sticking to this diet has been the hardest part. But. she has steadily improved.
Initially she started on prednisone when she first went to the naturopath because she was feeling pretty
rotten and she felt that she needed it to get over the hump. The naturopath had no problem with that.
She is still on all of those supplements plus he finally let us resume probiotics. He wanted her to heal
before we started back on the probiotics. She is feeling so much better. The bleeding has stopped,
the bowel movements are greatly reduced. She stopped the pred about 2 months ago and is doing fine
without it. She is scheduled for another remicade next week and is trying to decide if it she wants to
continue. I told her she may be able to maintain with Rowasa, so we will see. Her gi had never prescribed
them. (Actually he had her stop the L-glutamine when he decided she was sufficiently healed).
He also wants her to have a hydrogen breath test because he says a lot of her symptoms are
consistent with SIBO. So that is something we will do when we get a chance.
That's kind of where we are. We have been very happy with the naturopath. The biggest problem we
are having is finding a gi who is willing to work with the naturopath. When my daughter strays from her diet or
gets stressed from school, she has to be really careful and get back to healthier eating. So far so good,
knock on wood.