Seasonal flare ups

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shiloh04
Regular Member


Date Joined Dec 2010
Total Posts : 21
   Posted 10/29/2011 8:06 AM (GMT -6)   
I was wondering if anyone has seasonal flare ups. It seems to me that I almost always have problems when the fall season starts.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 10/29/2011 8:48 AM (GMT -6)   
I seem to always flare up around Christmas time. Not sure if it's cold weather-related or stress-related or what.
27 years old; diagnosed pancolitis March 2007

Asacol, 6 tabs, 2xday; Rowasa once a week; Canasa as needed for flares; Ortho Tri-Cyclen; Geodon; Singulair, Allegra, multivitamin; Metamucil wafers

beatUC
Veteran Member


Date Joined Mar 2010
Total Posts : 1428
   Posted 10/29/2011 8:59 AM (GMT -6)   
My doc has over 300 UC patients. He told me we all have seasonal flares, mainly spring and fall.
Personally, for me summers are good, winters are bad and whenever I have to get a scope, it sends me into a flare.
Imuran
Asacol
prednisone as needed

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16057
   Posted 10/29/2011 9:27 AM (GMT -6)   
Winter seems to cause me problems as well :(
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (50mg) + Pristiq (50mg) + Canasa (1g PM) + cerazette

Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 10/29/2011 9:33 AM (GMT -6)   
Yea winter season for me too. I took a trip to seattle a month ago and it was rainy/cold the whole time. Started flaring a few days later :(
Male. 31. Tattoo Artist. Diagnosed with UC summer of 08.
Diagnosed with pancolitis 1-3-11 from 2nd cscope.
Pred 30mg tapering, 6mp 100mg.
AsacolHD (2 @3 x a day).
Canasa every or every other night.
Slippery elm, vitamin D, wheat-free, dairy-free, gluten-free(most of the time), LOTS of water.

Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 10/29/2011 11:43 AM (GMT -6)   
fall and all winter
Got Colitis after I quit smoking years ago.
Remission seems to only be in spring summer months,. Flare all fall and winter.

1 Align, and 6 Asacol a day, can't retain the enemas. Doctor today said I can use 1/2 suppository(Canasa) 2 times a day. I also take Pepcid (prescription) for my stomach.
Now he wants me to try Imuran.
Started on Imuran(generic) Sept 30th 2011.

jse
Regular Member


Date Joined Sep 2009
Total Posts : 223
   Posted 10/29/2011 12:00 PM (GMT -6)   
Yes, I most definitely flare more during certain seasons. Fall and Spring seem to be the worst for me!
Female/Diagnosed with mild distal UC/30cm up in May 2009

Canasa - 1 suppository a day (2 when flaring)
Asacol - 4 tabs 2x day
Prednisone -Been on it for 5 months with various tapers. Currently at 10mg from a start at 40mg. Tapering by 2.5 from here on out til I'm finished.
Calcium & D - 2 600mg/day
Multivitamin - 1/day

jazzlyric
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 10/29/2011 1:05 PM (GMT -6)   
Same here, fall and winter kick my butt, (no pun intended). I had a severe flair in april of this year that put me in the hospital and I just started a nother one 6 weeks ago, but this one, so far, is not to bad.

Ive had colitis since I was 13, Im now 56, but I treated it without meds right up until this year. The last flair was the first severe one I ever had, so Im on asacol now. Im hoping the asacol is the reason this flair is not getting to bad so far.( Only going 2 to 3 times a day, and still formed with very little bleeding, so Im keeping my fingers crossed.

But for sure fall triggers it off most every year. Im thinking its living north of where I use to live, I came from Miami, and now live in Ventura ca...Ventura is a good deal north of Miami and my symptoms do seem worse since I moved here 15 years ago, or its just the progression of the disease. Dont know. I think it might be sun light and chemistry changes in the body, or temperature. Hormones, neurotransmitters and so on do respond to environmental changes for sure.

For me diet, stress and seasonal changes, all seem to be a huge part of my illness.
I treated my UC holisticly for 12 years whith good results.
4-14-11 all hell broke out and I ended up with a full on sever flair for the first time. 15 to 25 BM's with blood a day, coupled with sever malnutrision. Went from 165lbs to 127 in 6 weeks.
Preg 60mgs a week with a taper. Off now.
Asacol 4800 mgs a day.
Diazapam 2 Mgs for sleep.

jazzlyric
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 10/29/2011 1:34 PM (GMT -6)   
How long do all of your seasonal flares last, Blood BM's and so forth, ???
I treated my UC holisticly for 12 years whith good results.
4-14-11 all hell broke out and I ended up with a full on sever flair for the first time. 15 to 25 BM's with blood a day, coupled with sever malnutrision. Went from 165lbs to 127 in 6 weeks.
Preg 60mgs a week with a taper. Off now.
Asacol 4800 mgs a day.
Diazapam 2 Mgs for sleep.

Billfk
New Member


Date Joined Jan 2016
Total Posts : 2
   Posted 1/26/2016 9:26 AM (GMT -6)   
I am glad I found this site. It's been 1 year since Jan 18th since diagnosed. I have been on 2400 mg per day asacol and have been good. 1 to 2 bm's a day no blood or pain. I have had an increase to 2 to 5 in a 2 hr time in the am after getting up then fine all day just a bit gassy. Dr increased Asacol to 1 pill and a half a week ago to a slight improvement. a Nurse told me to add vitamin D which I am going to do. I definitely think its seasonal where its flared about the same time last year. I do not limit diet and wonder what others tend to eat? From what I have read others of you have had it a lot worse so I feel blessed!

Bill

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12110
   Posted 1/26/2016 11:03 AM (GMT -6)   
You can do upto a maximum of 4,800 mgs of asacol a day. Why deal with seasonal flare, when a continuous higher dose might just stop seasonal flares from happening. Seems, to me, like your dose is to low. Ask your gastroenterologist.
Moderator Ulcerative Colitis
John
, 37, UC in histological remission
Rx: Remicade @5mgs/kg/8wks

I bet the dog is wondering if someone's going to rub my nose in it, I thought as I stood in anguish just several arms length from my goal.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 1/26/2016 11:13 AM (GMT -6)   
Add rectal meds. What asacol are you using...400 mg or 800mg?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Billfk
New Member


Date Joined Jan 2016
Total Posts : 2
   Posted 1/26/2016 12:51 PM (GMT -6)   
I am om 800mg. Taking 1 1/2 pills 3600 since last Monday. Doc up a half 3 times a day.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12110
   Posted 1/26/2016 1:33 PM (GMT -6)   
Asacol tablets should never be cut in half. They have a delayed-release chemical coating. When you cut a pill, it will never place the medication in the right place... crushed/cut pills are a really bad idea.
Moderator Ulcerative Colitis
John
, 37, UC in histological remission
Rx: Remicade @5mgs/kg/8wks

I bet the dog is wondering if someone's going to rub my nose in it, I thought as I stood in anguish just several arms length from my goal.

Reillysmom
New Member


Date Joined Mar 2013
Total Posts : 14
   Posted 1/26/2016 3:36 PM (GMT -6)   
First flare was March, but that was supposedly due to a combo of Naproxen and then back to back cycle of antibiotics for a bad sinus infection. The two flares I had that landed me in hospital for an extended period were October and September respectively. Since Remicade I am only bothered by my IBS...that's not seasonal...its just being dumb and eating the wrong thing😀. I think vitamin D helps a lot since I live in the north country...my GI said she sees a lot of people affected by seasonal changes...

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8318
   Posted 1/26/2016 3:59 PM (GMT -6)   
Bill buddy -

if it was your idea to cut a pill in half, well then you're macguyver !

if it was your docs idea, well then he's not too bright -

ya, stick with the whole pill and round up as needed -

good luck :-)
dx'd with pancolitis 12/21/03
current supplements:probiotics, vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with :-)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 1/26/2016 5:39 PM (GMT -6)   
yeah, don't split/cut the pills...they don't work right that way.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Brucesmom
New Member


Date Joined Jan 2012
Total Posts : 13
   Posted 4/3/2017 10:14 AM (GMT -6)   
Hi,
My son is 15 and his UC is cyclical. It started around feb/march when he was 8 and has been that way ever since. Last year we thought we were going to miss a year but his flare was around the end of may. We have contributed his flares to his activity. If he does too much and gets run down he will flare at this time. We just figured out the activity part. So here we are waiting to see if he will flare as he reduces the amount of activity he has. So far his lialda and canasa is working. Crossing fingers
UC started at 8 he's almost 16
At 9 refractory pancolitis was scheduled for colectomy. Colon cleared itself the following month before surgery.
Gets a flare cyclically
Past meds - remecade,asacol,prednisone oral and suppository
Current meds - lialda, Canasa, centrum vitamin, and Prozac (for congenital myasthenic syndrome) and has tremors throughout body.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 12110
   Posted 4/3/2017 3:12 PM (GMT -6)   
If he's flaring regularly then get him on stronger UC medications like azathioprine/imuran, 6MP, or a biologic like remicade/humira.
Moderator Ulcerative Colitis
John
, 38, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Mesalamine DR, and rowasa

Have an acquaintance who poo poos your UC suffering? Give them Gatorade with colonscopy prep before embarking on a long car ride, then perhaps they might start to get our urgency and anxiety!
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