I don't think scientists have a complete understanding of how our gut works, especially with regard to gluten. There is good evidence that inflammatory bowel disease is either due to, or causes, an upset in the gut flora, and you need a certain kind of gut flora to fully digest gluten. Those with a genetic condition that causes celiac disease are missing certain enzymes, I think, that are required to digest gluten. It takes both your body's normal production of those enzymes, AND the proper gut flora, to digest gluten completely.
Undigested gluten causes a lot of unfortunate things. In celiac disease it damages the villi in the small intestine and eventually causes poor nutritional absorption and many other problems. For those who are "merely" gluten intolerant, I think the ill effects are more varied.
For the first 10 years of my diagnosis I toyed with the idea of eliminating gluten but did not test positive for celiac disease and continued pursuing treatment for my IBD with medications. My GI has long felt that I was not "sick enough" to warrant modifying my meds to more aggressive treatment, so facing a future that included diarrhea, cramping, anemia, fatigue and joint pain without stronger meds, I thought I'd eliminate gluten and see what happened. Within 2 weeks I had better concentration at work and less fatigue. Within 3 weeks the soft stool was completely gone. My joint pain has continued to recede, although it is not completely gone. My motility issues are still with me. My GI was pleased that I'd done this and I am too.
So without knowing really what's up with you, Max89, I'd say it's worth a shot to go gluten free for 3 weeks or a month and see how you feel. There's nothing to lose, really. It's not that hard to do.
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.