Hey all, wanted to update you on my status. Quick background for those that haven’t read through the thread.
Started Lialda 3.5 months ago, immediate improvement and got to near full remission within a month or so. Efficacy started to decline after 2.5-3 months, and I was back to diarrhea after continual deterioration day after day for a period of 3 weeks. At this point, I added VSL, Slippery Elm and started smoking cigarettes. Dramatic turnaround immediately, first day over day improvement seen in weeks, back to formed stools within 72 hours.
Now here’s the update: Originally I was convinced that it was related to cigarettes since I had tried a bunch of different supplements/diet with no apparent affect. However, I stopped the slippery elm & VSL combo 7 days after starting it and immediately started to deteriorate again (stools got real skinny within a couple of days). So after a couple days of deterioration, I stopped the cigarettes and re-added VSL/Slippery Elm, and within a few days I’m back to fully formed stools again. I still have the slightest bit of urgency so there is a bit of inflammation still, but we’ll see if this combo reduces that the rest of the way.
For those that are wondering on dosage, I believe dosing of any supplement must be aggressive. Remember, pharmaceuticals are concentrated, powerful chemicals. Supplements need to be taken in large doses in order to even touch our condition. I’m taking 6 capsules of the slippery elm bark 3x a day with a glass of warm water on an EMPTY stomach and taking 2 capsules of VSL twice a day around the same time as the elm bark. I just ordered some of the organic powder so I’ll switch to that from the capsules on Saturday.
Also, I just got $1,500 worth of VSL #3DS delivered to me for an $87.50 copay. So I’m switching from a couple capsules a day to 1 sachet 3x day, which equates to 2.7 trillion bacteria daily.
My end goal is to start reducing my Lialda from 4 pills a day to 3 then 2 over a period of a month or two and see if I can maintain remission despite the dosage drop. Getting off meds completely would be an absolute dream, but one step at a time for now.
Its very possible the nicotine did something, but from the tests I’ve conducted above, it would appear pretty clearly to me, that of all the supplements/diet etc. that I’ve tried one or both of the VSL, Slippery Elm Bark appear to be the primary contributor to reduced inflammation. No other dietary changes were made over the past few weeks since I was trying to narrow the variables as best as possible (see my sig for my current regimen).
I know what works for one person doesn’t necessarily work for the next…but I’d definitely recommend giving slippery elm bark as well as VSL a shot if you can obtain it affordably. Make sure you do it with adequate dosing…natural supplements require a significant amount to deal with an active diseased/inflamed condition. Be patient with it too, the VSL can take weeks to start showing any real efficacy but at least in my experience, the elm bark provides more immediate benefits.
"Victory is always possible for the person who refuses to stop fighting."
Diagnosed: Moderately Severe UC in September '11
Medication: Lialda 4x once daily
Other: Anti-inflammatory diet, fish oil (3g), BCQ, Curcumin (2g), L-glutamine (8g), Slippery Elm Bark
Current UC Remission Status (1 Bad, 5 Perfect): 1 2 3 4
Post Edited (greenuc) : 1/5/2012 9:05:42 AM (GMT-7)