To start, this post is for the folks reading on here thinking about
surgery or have surgery looming in the near future. So please refrain from turning this into a "J pouch surgery is evil and don't do it thread". I just want to give the people out there some info in case they were wondering about
living with a J pouch. There has been some questions recently and I am just telling MY experience on what it is like living with a J pouch now that I am over a year since surgery.
The biggest thing people seem to be worried about
is the amount of times a day one uses the bathroom. I was worried about
that too before surgery thinking 6x a day sounded like a lot. I am here to tell you it is not a big deal. There is no pain, no blood, no cramps and best of all, no urgency. I usually empty when I use the bathroom to go pee which I seem to pee more than 6x a day since I drink so much water. I think someone asked jokingly if I can empty on command. Well I kind of can. It's not like having a bowel movement with a healthy colon....that takes a lot longer! Emptying my j pouch is very quick. It's not like you are in the bathroom for hours on end which is what I thought too before surgery. I'm a very busy mom...I work part time for my husband's business and also part time in a busy retail store. Believe me, I don't have time to be sitting in the bathroom! I usually go 1x when I wake up...then I am good until about
3pm and go then. Two more times after dinner and then I usually have to get up in the middle of the night to go. That is my only complaint if I had to complain about
something is the middle of the night bathroom trip. It does vary but that is my typical day.
I can eat and drink whatever I want again like before the UC days so that has been such a blessing for me. And the best part about
having a j pouch, aside from not being sick anymore of course, is the fact that there are no more drugs to take. I just pop my multi vitamin and my iron supplement each day and that's it. A lot of people opt for just a permanent ileostomy and that's awesome but I knew I wanted to give the J pouch a try since I have two family members with j pouches and I saw how well they turned out.
Ok so is it like having a normal, healthy colon? No, of course not but that wasn't in the cards for me and it's not in the cards for a lot of people unfortunately. And again, this is just MY experience living day to day with a j pouch. I know what a scary thing it is to have to face surgery and it's nice to read positive, real people experiences about
it. I did my homework so I knew the risks and anyone considering surgery should get as much accurate info as they can about
it. Good and bad. So my sincere best wishes to all that are struggling with this decision right now.
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery-got my life back! :)
Post Edited (ByeByeUC) : 1/5/2012 6:07:58 PM (GMT-7)