I've been doing fairly well lately; I started flaring in August-September, got really bad in October-early November, and started improving in late November. However, I haven't quite recovered.
For the last month this has been the pattern of my symptoms: Perfect to near-perfect bowel movements & stools for 3-4 days, then one day I wake up with pain, loose BMs, and urgency. The stool is as if I had eaten only Jalapeños the previous day... the stools are extremely burning and leaves my bum super irritated. Next day my stools are more normal, but I bleed. That lasts 1-2 days, and then I have again 3-4 days with perfect to near-perfect BMs & no blood. I've been on that pattern since late November.
Today it was one of the bad days, but it has lasted longer and has been more painful than usual... I was on the beach with my family and woke up with abdominal pain, went to the bathroom like 7-9 times, and after the 3rd time my stools were BURNING, as if they were sufluric acid. It was never like diarrhea, but it was loose and extremely painful. I was super crampy in the morning, from like 10 to 2 PM, and then I had to drive back to the city... I was able to make it, but now it's the evening here and the pain came back. No BMs yet, but I have a lot of cramps and abdominal pain.
If the pattern holds true, tomorrow I'll have more normal but bloody stools and in 2 days I'll be fine, however, I'm worried that this time i've been in a lot of pain for the entire day, so, questions:
1- What is it with the burning, sulfuric acid-like stools??? In my first flare in 2010 I never experienced something like that, and in this flare I only started having those burning BMs when I started to improve overall in November-December. Does anyone experience that? Is it normal? I've never read of anyone complaining about burning, irritant, acidic stools. I got a C-diff test and parasit tests in mid December and they were all normal.
2- I imagine that having such irritant stools going through my colon will exhacerbate its irritation, and therefore the next-day bleeding is normal. May this be a problem with another organ that secretes any sort of acids for digestion? (liver, pancreas, etc) that's causing the severely irritating stools?
3- How about toxic megacolon? Is that something I should worry about? Right now I feel like crap, I have cramps, no BMs, and my belly is a bit swollen, but I don't think I'm in risk of developing toxic megacolon since I've been doing fairly well overall with the exception of today. What do you think?
I'm sorry for the lengthy post, but I'd appreciate your help. If there's anything I can do to help you deal with this crappy disease, please let me know!
Cheers from South America
Male, 26, Mild Ulc. Proctitis, 10 cm, diagnosed on July 2010
March '10, bleeding began
July '10, Got worse, right after colonoscopy and diagnosis. Remission by Oct '10, minor flare in Jan '11
September 2011, New big, worse flare, New colonoscopy showed 15cm of rectum and 4cm in splenic angle (CD?)
Meds: HC Supp, 25 g (tapering), Pentasa Supp 1g 4x a week
Pentasa 3.5 g/day, considering Prednisone