Posted 2/15/2012 9:10 AM (GMT -6)
I've never posted on a forum but I read these all the time and wondered if anybody could help
I was diagnosed two years ago with UC and had a very bad flare, I was single so obviously getting up in the night and being crazy on sterroids wasnt a huge problem. Strangely one guy took me on holiday and another took me out all the time but I could go home and be on my own for any messy getting up in the night toilet runs so never had to share my symptoms. IV sterroids did the trick that time.
I've been great for two years. My boyfriend of a year is great, his dad had colitis and we even did a huge sponsored bike ride last year to raise money for Crohns and Colitis so he roughly knew the deal and I did warn him.
ANYWAY, I'm in my second flare, and things arent so great. Feel fine in myself but having heavy bleeding and going about 8 times a day, mostly at night so the doctor put me on Prdisolone, I went mental! I cried for a week, (luckily boyfriend on nights that week didnt see me, he also hasnt stayed over in nearly two weeks so he hasnt seen me get up 5 times in the night) him working shifts seems to make my crazy worse, his normal easy going girlfriend called him twenty times the other day, twenty!!! yeh i counted the missed calls and felt guilty. So I really really need him to be there right now, I have loadsa people around me and I'm not needy, but would like his support.
However the symptoms have got worse in the last two weeks so my specialist has just called me at work and sent me home to rest for a week and a half and said I'm to start taking Steroid Enemas from tomorrow for a week.
My question here is, do I expect to not see my boyfriend for the week. Are they messy, is it gross? I figure sex is off the agenda, do I see him and send him home before I steroid up, and sleep. We get hardly any time together as it is, and this truly sucks! I need to make up for being crazy, we have a date tonight, a curry, rooky error but I dont want to cancel. my healths more important and I understand its just for a week (two at most, as after that they're admitting me into hospital if these dont work) I'm just wondering about the logistics side of a sterroid enema. is it like a period and I just lay down and wear a pad? many questions. He hasn't even seen me break wind, and I take great care of myself. How do I balance gross me time and time with him while getting the friendship support I want, feeling close and not being seen to disgrace myself.
Any advice would be great..