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london didi
Regular Member


Date Joined Jul 2011
Total Posts : 39
   Posted 2/19/2012 4:09 AM (GMT -6)   
I have had proctitus for 9 months which responded well when I was finally put on Salofalk enema 2g and Mesalazine 800 mg. 3 x twice daily from Jan . I have now been symptom free for six weeks and my Dr wants me to start tapering off the medication. 
He hasn't actually said how, but said start with tapering the enemas first. I have read so many reports of others not  able to stop the enemas,  I am worried as to how "slowly " to do this. 
This week I have used an enema for two nights then one night not. My thinking is next week to use one every other night and continue this for a few weeks and then if everything is ok perhaps 3 per week etc etc. 
Has anyone had success in reducing the enemas first and then the tabs. Hints of how slowly to do this please.
Many thanks

Salofalk enema 2g
Mesalazine 800 mg. 3 x twice daily

tournevice
Veteran Member


Date Joined Mar 2008
Total Posts : 713
   Posted 2/19/2012 7:12 AM (GMT -6)   
I was told mainly on this forum to do the enemas nightly until symptoms free. Wich you are. But what i heard from members here and from my doctor is that somewhere like 3 enemas a week is of good standard. But i wouldnt taper down 3 enemas a week for a while though. Just my guess.

You could maybe do like you said 2 nights you hae them then one night off.. so that would make 4 every 6 days wich isnt bad. But i wouldnt taper down every week.
Then again it's just me. Symptoms of UC are so difficult to get under control but oh so easy to come back. Better be safe than sorry.

Im glad they worked for you.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 2/19/2012 9:14 AM (GMT -6)   
Great you're doing better!

Start the tapering process for going to every second night for at least 3 weeks..if all is good, go to every third night...see how you do then.

It would be best for you to eventually taper to just twice a week and stay there. Then, taper the oral by pill every 2 - 4 weeks

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
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