Posted 2/29/2012 7:40 PM (GMT -6)
I know many people have an issue with leakage. From people with IBS, to people with IBD, to people that haven't yet realized they may have a major medical situation and get stuck posting useless questions on message boards on the web, where the entire thread consists of the blind leading the blind and asking the same question over and over...
I believe I had some leakage issues prior to knowing that I had UC, but I don't know exactly what it was that was leaking, and I don't think it was necessarily stool at that time.
After getting diagnosed and started on Colazal, I would have periods where I don't think I was having this leaking, but then again, I wasn't actually even aware until about maybe 1 year ago that I had a leakage problem. I had no idea that a person could leak out of that end. Then my GI let me run around in circles with myself thinking that it was mucous which I have been informed countless times is "normal."
Well, it is not mucous, nor is it normal. Feels good to say that. Going gluten free has certainly helped, even with this stubborn issue. In years prior, I would get leakage occuring, felt simply as moisture, especially during the act of eating. I seemed to notice it would be especially bad if I ate a lot of bread, like at subway, and less so if I ate foods with little bread/wheat.
The leakage would be of course foul smelling and would tend to have an oily consistency, which also makes it hard to clean up as the toilet paper will just skip over it and it dries up. Most always it appears orangish to a light yellowish brown.
Canasa seemed to help pretty good, but I had to keep taking it. It also took away the burning sensation I realized I'd had (probably out of control proctitis that no one in the medical profession every explained to me).
Going gluten free has helped probably as much as the canasa had, however, for some reason now I am noticing that even though way more of my bowel movements are formed, the stool is mushy (and perhaps oily?) I have to spend like 4 minutes cleaning up after a movement, with a wet wipe, only to have a mess again in like a matter of hours. Then, after I wake up in the morning and shower, it is again like I've never wiped.
I have a lot of questions about what the cause of this could be.
Could it be the colazal making my stool abnormally soft?
Could there be scarring affecting my sphincter or rectum due to untreated proctitis?
Neurological damage from years of (perhaps) being gluten intolerant and consuming wheat?
An additional food allergy/intolerance?
and the topic of the post: Exocrine Pancreatic Insufficiency?
I found an article abstract titled "Rectal Seepage in a patient with Celiac Disease and Secondary Pancreatic Insufficiency" The article is from 1968!
"...the patient noticed rectal soiling, consisting of an orange-colored oily liquid. This seepage of oil occured independent of bowel movements."
"...a patient who presented with a history of steatorrhea and rectal seepage of oil. The suspected pancreatic insufficiency was found to be secondary to malabsorption."
My point is: My doctor has never done anything more to address this leakage issue with me than to call it an IBS issue. Even though I found some improvement after going gluten free, I still have one heck of a messy ass all the time, and I'm about darn well fed up with it. Especially when I think that there must be a reason that IS ABLE to be discovered, if only a doctor cared enough to investigate.
What do you guys think? I know many people have this issue, and yet this, an abstract from a 1968 paper is the nearest thing I've found in years of searching to describe my state of affairs (past/present)