I had my first visit at Mayo about
18 years ago when I first started UC symptoms. They confirmed back then I had Ulcerative Proctitis. Had been going to doctors in the Twin Cities until last year where I decided to try Mayo again (and my insurance had just started to cover Mayo again as well).
I had been in remission for over 10 years with no signs of bleeding during that time but other various symptoms that I weren't sure were UC or IBS related. So I wanted to go there and get their opinion. They did a colonoscopy last July and told me I didn't have UC as they did not see any indications in biopsies or during the test of "active or chronic inflammation". So the doctor told me to stop all my medications (Colazal 3 pills/3 times/day and mesalamine enema once nightly). They couldn’t explain why 17 years earlier I had bleeding on and off and why they diagnosed me with proctitis back then. Stopping all my meds seemed a little hard so I tapered off of them. After I got done with the enemas I went into my first flare and a lot of bleeding after over 10 years. Went back to Mayo for a Flex Sig and low and behold, I do have UC. Had to go on Prednisone and still trying to get off.
So I guess my feelings about Mayo are mixed. Maybe I had a bad doctor? They seemed pretty darn sure of themselves when telling me I didn’t have UC and the fact they had no explanation as to why I had bleeding in the past seemed pretty odd. The doc I had seemed pretty nonchalant about the whole ordeal. Granted I did start out with a doc who had been at Mayo a long time and they ended up giving me to a resident for all appts after that. So it could be lack of experience on the resident doctor’s part. Haven’t decided if I’m going back there long term yet or not. Just trying to get back into remission right now.
Not sure what doctor you are seeing, but if I were you I’d at least insist you continue to see one of the docs who’s been in the department a long time and not get passed off to a resident.
UC - diagnosed 1994, in remission for 10 years, currently in a flare
Meds: Colazal 3 pills/3x day, 1 mesalamine enema nightly.
Currently tapering Pred by 5mg weekly and at 15mg