Posted 3/17/2012 9:21 AM (GMT -6)
Sorry to hear you are having a rough time, was there last month, def sucks to be in the hospital. I totally get the frustration at having your life on hold, I have felt like that for awhile. I keep saying I want to get back to normal, but just can't get there. Just try to focus on getting better and know this won't last forever, even if it feels like that right now.
Fluids and probably more pred will help you feel better pretty soon, and then they can watch you and make sure, as you barely got a break from being sick after your last bout in the hospital. Def sounds like its time for a step up in medication, Azathioprine is the next logical step. That will help you ease off the pred when that time comes, trying to taper off pred and getting rebound IBD symptoms is so frustrating and Aza can help with that.
Just take of yourself, try to relax--movies, music, books, whatever it takes to get through right now.
33 years old
Left side colitis/possible Crohn's colitis
Currently on Asacol, Cimzia
Imuran failed, can't take 6mp, Humira failed
Mesalamine enemas as needed
Vitamin D, VSL#3, fish oil, calcium, magnesium, multivitamin, slippery elm bark powder tea and turmeric
Diagnosed with many food intolerances including dairy, oats, lime, squash, etc.