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zed92
Regular Member


Date Joined Jan 2010
Total Posts : 28
   Posted 3/17/2012 1:40 AM (GMT -6)   
I'm incredibly lucky to currently be in remission, yet UC still affects my life in many ways. I was wondering if there are any college kids on this forum who sometimes feel incredibly alone when dealing with this condition? There are times when the dining commons food gets to me or I get incredibly painful stomach pains from the stress of school and I sometimes wish that there were people who I could talk to about it. Anyways, if there are any college kids out there with UC who feel a similar way, please share!
Age 18
Diagnosed: 2006
Past Meds: Prednisone
Current Meds: 6 MP, Asacol

Post Edited (zed92) : 3/17/2012 1:43:57 AM (GMT-6)


despi
Regular Member


Date Joined Dec 2011
Total Posts : 44
   Posted 3/17/2012 9:48 AM (GMT -6)   
Hi zed92 Im a college student and also play soccer for my school. I have been in a major flare since preseason (august) and it has really been a struggle. My friends dont always understand and I do feel like there is no one else with my condition. I find myself running out of the dining hall a lot or just eating alone in my room because of the anxiety of having an accident. The worst for me are tests because I stress out about them while I am taking them causing me to focus on my stomach and not the test! UC has even made me miss my spring season. Ive lost some weight, have no energy, hurts when i bend or move funny, and am just all around weak, so I have been sitting out at practices.

And then there is the social life aspect. I havent gone out in two months so Ive really been confined to my suitemates and hw. Im in no mood to go out and have anxiety about being away from a bathroom or in pain so I just stay in and try to stay positive!
20, University Athlete, diagnosed with UC in March 2011
Asacal 6 pills
Prednisone 20 mg (been trying to taper of since August but symptoms return everytime I go to below 10mg.)
Mesalamine enema at night
Canasa Suppository in the morning

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 3/17/2012 3:30 PM (GMT -6)   
Hi zed92. I guess you could say I'm a lifelong college student. I'ma knowledge hunter. I graduated from UD. Lucky me I was dx'd with UC my freshman year. I was in the BA athletic training program at the time before I switchd to Biochem. I was more scared of this thing than anything in my life and there were no forums or advice then. Ask anyone if they would enjoy dropping what seemed like pints of blood in the john in the middle of the night out of an otherwise extremely fit and healthy male. So I became a ninja.

I smiled at despi's and ur comments about dining hall food. I became good friends with the secret bathroom around the corner I found in the slop hall. I had no clue what I could eat and what I couldn't. I just winged it and survived. I even used the ladies one sometimes when the dude's one was occupied. I couldnt keep blowing up the 2 stall crapper on my dorm floor as I was already getting a bit of a rep for "killing the crapper."

The early years of UC and college completely destroyed my confidence, pride, ego, social life with every flush. Now I just laugh at it all and savor those times that made me the man I am today. I fear nothing now bc of those experiences. Adaptation, creativity and trial and error allowed for me to survive college, and it took me 6 years.

My pointers: Learn to handle stress properly. Buy and take your own tp to dorm crappers, the stock tp will become sandpaper to you. No one will judge you and most will do the same bc of your good idea. Get your own room asap, or at least with someone you can trust that won't kill your already depleting ego further. Shared dorm bathrooms will destroy you.
Be honest with every girl you date and any jerk professor that may not let you leave class for any reason from the jump, no hiding it. Even if you have to drop some med proof on them. Without straining, BM when you can as much as you can especially before social functions and exams. Become a master of the stealthcrap.
Never say you have to go #2 when dismissing out of a social function. Just say u gotta pee, its more acceptable for some reason. I used immodium like it was candy but I probably did some real damage in there, so use at your own risk vs the risk of accidents. There is a balance you will find. Limit your alcohol as much as possible or just throw it up secretly. Whatever works.
This could go on for pages but I'm going down memory lane here and laughing too much so I gotta stop here.

Peace and Love
35 yrs old, had this thing since 95 blah blah I hate it
in remission -I know what I'm doing, college grad, researcher, more blah blah
Been away for awhile and didn't die yet, now stronger faster bigger smarter
Coconut Oil, Tons of multi-strain Probiotic Yogurt, lactose n fatfree protein shakes, Metamucil, Hi Glycemic sugars, raw foods, AAKG, oysters, MCTs, wanna know more? just ask

Bacon Girl
Veteran Member


Date Joined May 2011
Total Posts : 5490
   Posted 3/17/2012 3:36 PM (GMT -6)   
being in college is definitely hard when you have UC. i had a really bad flare last year during my senior internship and trying to finish school was really hard. luckily, i was able to get a lot of my work done at home but it was really hard. i wasn't sure i'd graduate but i did. i wasn't able to go to graduation, but just getting the diploma was all i wanted. i told my teachers and bosses about my condition and they were really accomodating.
Joanna
22
current meds: remicade every 8 weeks- not working at all.

Jcal87
New Member


Date Joined Jan 2011
Total Posts : 16
   Posted 3/17/2012 5:28 PM (GMT -6)   
Let me tell you it sucks... I probably will not get into my school of choice due to flares affecting my grades. I am severely ADD and I can not take my adderral because I find the medication to upset my colon.

zed92
Regular Member


Date Joined Jan 2010
Total Posts : 28
   Posted 3/17/2012 5:50 PM (GMT -6)   
Thank you all for your responses! Like I said, I'm lucky to not currently be flaring...but I just feel like this condition really takes a psychological toll on you. I'm constantly anxious about finding a bathroom on campus where there won't be anyone else. And there are so many days where I'll be worrying about my stomach and it just completely messes with my mood and I feel like there is no one to talk to about it. I guess what I'm really getting it, is the amount of time and energy I spend towards thinking about/dealing with how my stomach feels. It just makes me feel pretty separated from everyone else
Age 19
Diagnosed: 2006
Past Meds: Prednisone
Current Meds: 6 MP, Asacol, Canasa

zoom
Regular Member


Date Joined May 2010
Total Posts : 20
   Posted 3/17/2012 6:05 PM (GMT -6)   
There are probably other people with UC on your campus, I was suprised to find out when I got an e-mail from my class president that he was affiliated with CCFA. I don't live at school so I cant say much about that aspect, but the center for access and success( might be called something different at your school, it's the disabilities office basically) can help you get all set with classes. At my school they just sent out a letter to your professors saying I have a chronic condition that has flares and remissions, might require some extra absences and I might need to leave unexpectedly. It helps to not have to worry so much in atleast some aspect of school. I also found that just walking around campus I found some bathrooms that were usual unoccupied and some that were always occupied and made mental notes. Going to school and having UC is certainly not easy and I hope with you being in remission you have a much easier time!

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1990
   Posted 3/17/2012 6:08 PM (GMT -6)   
I'm also a college student, and I think the stress of balancing school work, relationships, friends, work and whatever else you can think of really got to me also. I transferred into college with a 3.5, brought it down to a 3.0 due to partying and going a little crazy for 2 years before settling into the wrong kind of romantic relationship... then i started feeling sick all the time, withdrawing from friends, my relationship etc... then it hit me last fall hard.

The changes i've made:

-SCD diet for 2 months
-Now gluten free diet
-no processed junk foods
-changed deoderant/shampoos/toothpaste etc from junk to natural
-whole some organic foods and supplements
-along with exercise and slowing down!

I know you can all get there, just don't lose your faith whatever that may be, you're not alone!
College Senior, diagnosed severe Chrons/UC - Sept. 2011

Meds: 800mg asacol 3xdaily, NO more prednisone!
Dietary: Aloe Vera Juice, Rainbow Light Multivit, L-Glutamine, Omega3 Fish Oil, Gluten-Free Diet.
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

Remission achieved in february by the SCD!

bosnianboy12
Regular Member


Date Joined Dec 2009
Total Posts : 342
   Posted 3/17/2012 6:19 PM (GMT -6)   
zed92, Welcome to the forum. I'm saying this because I haven't seen you here before. Now, back to your question. I'm currently a 21 year old junior at Kent State University. Ever since I've started college, I've been in a flare up. I started flaring up again my senior year of high school. It's been progressively worse. I've developed two fistulas since starting college. It hasn't been a walk in the park by any means. It's been a struggle every single day. However, I've managed to get through it with maintaining a GPA of 3.4 and being involved on campus. I try and be involved to keep my mind off of the disease. Yes, I feel very, very lonely sometimes. I've called my mother many times and cried to her over the phone. I'm sure there are other people who have it on campus, but I don't know most of them. What I did which may sound silly to some, was that I joined a fraternity. They have been such an amazing support group. I was talking to one of my brothers one time about UC, and he said, "hey that's funny I have the same thing." Small world really. You can get through it for sure. This forum helps me a lot too. These people are going through the same thing as us and they're awesome to vent to. Sure I may be annoying sometimes but hey, we're all on this forum for the same reason. To help each other out and find help. You'll get through college, I know you will.
21 year old student at Kent State University.
Diagnosed in 2003 at the age of 13 with UC or Crohn's. Diagnosis changed to Crohn's Colitis 2/8/2011. Again changed to UC 9/8/2011
Had a few remicade infusions. saved my colon. Ineffective now.
LDN started 5/25/2011. Stopped 9/8/2011.


http://www.facebook.com/ihadzovic

JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 3/17/2012 9:18 PM (GMT -6)   
My son is a college sophomore but he kind of stays away from forums. He lives in a Fraternity house with about 75 other guys and they have common bathrooms where there are not even stalls, just a row of toilets. He is fine with it. He has a pledge brother with Crohns/Celiac and one with IBS and he says that actually the guy with IBS is in the bathroom way more than the IBD guys.

He flared with about 8 weeks to go his Freshman year and if was pretty rough for him.

My heart goes out to all you young adults out there dealing with this while trying to find your way in life.

Welcome to HW!!
Julie

Mom of Son 20 UC dx at age 10, Lailda x3, Azasan 175 mg, Zyrtec D, Iron, Zinc, Protien Supplements.

Daughter 13 UC dx at age 8, Colazal x4, 6MP 25/37.5 mg, Culturelle, Iron, Zinc, Vit/Min.

46&crashing
Regular Member


Date Joined Sep 2011
Total Posts : 499
   Posted 3/19/2012 8:38 PM (GMT -6)   
I am the mother of a college student and I could not imagine dealing with UC at your age! You are way stronger than most on campus simply because you drag yourself to class everyday never knowing what will happen. A great number of college students will use any excuse to skip class. Blowing up a bathroom because of UC is way smarter than messing it up because of alcohol or partying like so many other students do! Hang in there and don't let any of this keep you from achieving your dream!
DX: May 2011
Current meds: 3 Lialda tabs each morning
Also on Prednisone 40 mg daily since 9/16 (can't get a successful taper!)
L-Glutamine
Slippery Elm
VSL#3
And this too shall pass!

Sibby
Veteran Member


Date Joined Apr 2010
Total Posts : 1357
   Posted 3/19/2012 9:32 PM (GMT -6)   
I got UC while in my first year of college, two years ago. I was underweight, malnourished and looked like death after my first flare.
I felt bad even after my flare. God, I remember that the bathroom was at the end of the hall, and every time I was cursing the school. lol.
But thankfully I told my teachers what I was going through, and they understood the disease. Even have a few friends who have it. And my boss at my internship understood, and sympathized with what I went through.

I'm grateful that I had people out there who helped me during my diagnosis. I made true friends during this time.


But be careful when you tell officials. I ran into a problem when they wanted me to sign up as a disabled student, which would force me into another year of studies. The officials said that they "had sufficient resources for IBD sufferers and you would benefit greatly from it."
One, there wasn't any resources. Two, they didn't help me period. They didn't put anything on my file to inform anyone of my issue. No help whatsoever. So be careful there.
22 · F · Ont., Canada
Inactive left-sided UC · Last scope: 0% inflammation
Asthma, seasonal allergies, Lactose intolerant, IBS
Salofalk made symptoms worse
Imuran, 50 mg · Alesse · Folic acid, 5 mg · Multi-vitamin, Vit. B, C, D, Calcium
Temp: Cipralex, Doxepin
Avoids: red meat, alcohol, high fat, fried, salt, sugar, dairy
Can have: fruits, vegetables, white meat, wheat

zed92
Regular Member


Date Joined Jan 2010
Total Posts : 28
   Posted 4/1/2012 11:13 PM (GMT -6)   
thank you all for your wonderful responses and helpful encouragement!
Age 19
Diagnosed: 2006
Past Meds: Prednisone
Current Meds: 6 MP, Asacol, Canasa

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1990
   Posted 4/3/2012 10:40 AM (GMT -6)   
Having UC really made me feel appreciative of my life, while other days I just crawled into bed asking myself 'Why'.

The doctor I saw at first made me feel like I would never get any better (than how I was at the moment - which was painful flaring), but having realized 'remission' is achievable, I came to better grips. And it helped to restore my faith with my mom - whatever works for anyone to stay strong spiritually!

My biggest fears (and some that still last today), is how I could be with friends, go on road trips or to festivals or just go out to eat and eventually have a relationship. I've never had 'urgency' or accidents but I've always come pretty close. I can't imagine living in a frat house, but I did live with three of my friends in a similar style apartment housing last year prior to full on UC.
College Senior, diagnosed severe Chrons/UC - Sept. 2011

Meds: 800mg asacol 3xdaily, NO more prednisone!
Dietary: Aloe Vera Juice, Multivitamin, L-Glutamine, Omega3 Fish Oil, Gluten-Free, VSL Probiotic
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

Remission achieved in february by the SCD!

Bacon Girl
Veteran Member


Date Joined May 2011
Total Posts : 5490
   Posted 4/3/2012 11:10 AM (GMT -6)   
stereo, you're lucky you lived in the apartment prior to UC! i cannot imagine having to share a bathroom with a bunch of my friends while having UC. i always commuted to school, and that got gradually harder being on a bus or trolley 3 hours a day. we have a horrendous trolley and bus system in pittsburgh and they are always breaking down at the worst times. i've gotten stuck on the trolley before when i've had to go and it's been miserable.

i agree that it sucks that i can never go on fun trips with my friends or have a relationship. most of my friends live far away now and i can never visit them due to major anxiety of driving long distances and staying at their place.
Joanna, 22
current meds: flagyl for 10 days and then hopefully doing fecal transplant! also have some LDN as a backup plan if fecal transplant doens't help
things i've tried- canasa supps, prednisone, 6mp, remicade, rowasa, lialda, cortico enemas, l-glutamine, vit e enema, VSL enema, aloe vera juice, slippery elm, n-acytel glucosamine

bostwis1
Regular Member


Date Joined Jun 2010
Total Posts : 271
   Posted 4/3/2012 2:06 PM (GMT -6)   
I was diagnosed the summer before my junior year. I lived with three other people and we only had ONE bathroom. I had many accidents. I missed out on going out with friends. UC even ruined my spring break trip. Thanks to prednisone, I made it through my junior year and half my senior year. I had my colon removed in December. I am returning to school in May and will graduate in December. My life does not revolve around the bathroom anymore!

It makes me sad when I read how people can't go on trips or have fun with friends. Don't let UC rule your life. The disease took almost two years of my life away. I was not about to let it rob me of ALL my 20's.
Sara
22 year-old nursing student
Diagnosed with left side UC June 2010
Current meds: NONE
Step 1 J-pouch: 12/19/11
Hernia repair: 1/5/12
Stomach perforation surgery: 1/21/12
No colon, no problems!

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1990
   Posted 4/3/2012 9:06 PM (GMT -6)   
bananagirl said...
stereo, you're lucky you lived in the apartment prior to UC! i cannot imagine having to share a bathroom with a bunch of my friends while having UC. i always commuted to school, and that got gradually harder being on a bus or trolley 3 hours a day. we have a horrendous trolley and bus system in pittsburgh and they are always breaking down at the worst times. i've gotten stuck on the trolley before when i've had to go and it's been miserable.

i agree that it sucks that i can never go on fun trips with my friends or have a relationship. most of my friends live far away now and i can never visit them due to major anxiety of driving long distances and staying at their place.


Oh yeah thats a big one for me too, visited and staying over at friends houses... eh.
Now that i'm hanging out with friends again, I'm getting asked to a few of their places for summer events and it gets me excited, but what I'm most nervous about is accessibility to the foods I want and taking my supplements, oh lord.

ucfighter
Regular Member


Date Joined Apr 2012
Total Posts : 59
   Posted 4/3/2012 10:04 PM (GMT -6)   
Hello everyone! I'm new to this forum, and I have to say this is one of the main reasons I joined. I too am a college student, but am finding it incredibly difficult to finish school. I was diagnosed back when I was still in hs (just entering senior yr). I had a terrible flare up then, lost a lot of weight, and missed some classes. Anyway, I went on to college hoping for the best. I took on a full work load, but the uc symptoms were still present. This is when I started to loose confidence and from then on dealt with anxiety. Sigh.. I so wish I could have finished college within 4 yrs :( As of right now I'm taking online classes. Is anyone else taking classes online? My only concern is if I were to finish a school online, would any job want to hire me?? For now I'm still looking into campuses to attend... to finish school once and for all!

Bacon Girl
Veteran Member


Date Joined May 2011
Total Posts : 5490
   Posted 4/4/2012 5:04 AM (GMT -6)   
ucfighter, online classes count just as much as regular classes do. i know my sister did cyber school and took a lot of online classes in college, too, due to her social anxiety. what are you going to school for? all jobs care about is whether you have experience in your field... ive noticed my degree isn't so important and that i could've gotten the same jobs without it.

right now, im looking into taking an online class just because i'm bored and not mentally stimulated. i'm thinking about a literature class since reading takes up time.
Joanna, 22
current meds: flagyl for 10 days and then hopefully doing fecal transplant! also have some LDN as a backup plan if fecal transplant doens't help
things i've tried- canasa supps, prednisone, 6mp, remicade, rowasa, lialda, cortico enemas, l-glutamine, vit e enema, VSL enema, aloe vera juice, slippery elm, n-acytel glucosamine

Trompetista89
New Member


Date Joined Apr 2012
Total Posts : 5
   Posted 4/4/2012 3:00 PM (GMT -6)   
I had my first UC flare up with just two months to go of my undergrad. It was ridiculous! When I started college, I was dealing with two other autoimmune disorders (they were in remission for much of the time as well). The UC came out of left field at the end of things - but I understand the stress and uncertainty of entering college and being on your own dealing with these kinds of illnesses.

My advice - try to be as honest as you can - with yourself, and with other people. Don't drink alcohol, then throw it up later just to 'fit in'. Just explain to people why you can't drink in as few words as possible. I hardly drank at all through college, and I didn't feel pressured to - I just explained to people that I couldn't because of my medicine, or because of my stomach/colon. (I still went to parties but brought my own non-alcohol. People appreciate it when you provide your own you-safe food or drinks to parties!)

The dining hall thing is very challenging. I couldn't find a good solution besides moving off-campus and cooking for myself. I was extremely busy, but I would try and cook large batches that would provide left-overs for other meals in the week.

As for the bathroom embarrassment - that's hard. I can't say I have good advice for that, besides investing in some tucks pads (they help the post-excessive bathroom discomfort quite a bit). I've gotten used to excusing myself frequently. I don't lie and say I have to pee - I just excuse myself without saying anything but excuse me! (Nobody else has to know what nature's saying to me when it calls!)

Also, if you feel a flare coming on, explain to your professors what's going on. When I told my profs. that I was anticipating missing class because of impeding poor health, they were very understanding and accommodating.

In my experience, if you don't make a big deal out of something you don't want other people to make a big deal out of, they won't. I was fortunate enough to find a group of friends who became like family to me - that was absolutely the most valuable resource I could have had! Just try to relax (I know how hard that is), and be you. YOU aren't your illness, but you have to do some things differently than other people to make sure you stay healthy. And that's ok, and you don't have to justify it to anyone.

Be well, and good luck in school! I think you'll be pleasantly surprised at your ability to manage this.

ucfighter
Regular Member


Date Joined Apr 2012
Total Posts : 59
   Posted 4/4/2012 5:21 PM (GMT -6)   
Bananagirl, thank you for your response! Initially, I was a liberal arts major.. got a few credits in here and there, and took a little time off. I'm now 24.. I was thinking about becoming a dietitian, but because this school thing is taking me longer than anticipated, I'm now going for a two yr program... DMS (diagnostic medical sonography). However, I'm still in the midst of completing the specific prerequisites for that field. Honestly, if I could find a decent job without any more schooling, I'd be content. May I ask what it is you're doing? Also, how did you finish your degree, online?

I know it may sound a bit silly, but for a little over a year now I've been in remission. But UC wore on me so much that I get anxiety when I have to sit in a class room. My anxiety ultimately leads to me feeling uncomfortable, and my stomach will growl quite loudly. I end up focusing on my stomach rather than the lecture! It's terrible. Does that embarrass anyone else?

Lynn21
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 4/4/2012 10:07 PM (GMT -6)   
I'm a college student and it is HARD dealing with UC and college. I'm a junior and I feel very alone. I'm at a small private college and to my knowledge I'm the only person dealing with this disease at my school. I'm constantly fearful of using public bathrooms and i literally pray when I'm cramping and trying not to make it obvious that i'm running to the restroom that no one is in there. I have very high bathroom anxiety.

My proffesors are mostly understanding, I had one who called me out for getting up and I just said " I have medical reasons don't you remember" she didn't and tried to embaress me so I turned her into the dean.

Most of my friends and sorority sisters understand but I literally have no luck what so ever with dating.

I was engaged and he left me, said I was too sick and he couldn't deal with it. It's hard when you get out on steroids every few months and gain 30 pounds, you don't find yourself attractive and no one else does.

So yeah, it's hard.
I'm alone and defintiely lonely here and I've been dealing with it for three years at school. UC since I was 12.

Maybe one day... =/

mindoverbutter
Regular Member


Date Joined May 2011
Total Posts : 236
   Posted 4/5/2012 7:34 AM (GMT -6)   
Hey I wanna make a shout and a "good on ya" to all the college students out here, because I have had UC for 3/4 of my college career (dx'd end of freshman yr) and it can be horrible. Give yourself a pat on the back, its a rough road but it can get easier.

The thing to remember is that your health comes first. Yeah yeah, your dropping thousands of dollars for a degree, but so what? If you don't have your health then where are you? In the hospital or on your dorm bed. Health is first. Having a disease like UC, in college, is something you need to learn to live with.

I spend a lot of time sleeping in and missing my morning classes. My roomates actually admire me. They said, how come you skipped? I say, I didn't sleep well the night before, so I needed to take care of my health and sleep in.

And then if I don't feel like going to class that day because of UC symptoms, I just fire off a couple emails to that day's professor's and jump back in bed. That's it. No need to sweat it more, we already are.

Last week I had to meet with many professors because of my prednisone tapering affects which is causing a lack of interest (adrenaline issues). I had to get extensions on assignments, and all of them tell me "you gotta do what you gotta do", extension granted.

If people understand now, they will know unfortunately IBD is on the rise, and they may even be lucky enough to get it some day.

As far as the dining hall, all of that food is ****. I actually believe dining hall food is a massive trigger to UC, and be even be a cause!!! It ****'s up even a normal persons insides. Imagine what it is to us Colitis peoples. I highly recommend you find a dorm with a kitchen applicians, stove, oven, microwave, fridge, sink. I have been preparing all 3 of the meals every day for the past 2 years on college campus. And when I go out to drink I bring all the ingredients of my mixed drink in my backpack: pineapple juice, coconut milk, and vodka. This is because I am following SCD (which is tremendous help)

Social situations can be hard. I did miss out on a lot of events, but yeah pack your bags, if you know popcorn is a trigger at the movie theatres, pack an alternative snack. Catch my flow?

My roomates know my condition, they are my good friends, people know I've been hospitalized, it's no big deal, everyone gets sick. A lot of people have more serious problems that aren't as publicised.

Keep up the good work

I am who I am, and what I am is who I am - Ghandi
22/m dx May 2009 chronic ulcerative colitis (whole colon)
dx April 2011 leftsided colitis (rest of colon appears normal, but the colitis is merely diffused)

2 Lialda 2x daily
1/11 SCD w/ homemade RAW Goat Milk Yogurt & Freeda SCD Multivitamin
1/13 Prednisone @ 30mg. 3/27 5mg every other day
SCDophilus 10 bil CFU
mesalamine every other night
JR's Brasco Broth

MNorthernlight
Regular Member


Date Joined Nov 2010
Total Posts : 47
   Posted 4/5/2012 10:45 AM (GMT -6)   
zed92 and all others,

I'm a 22yo senior in college. I'm also going to dental school next year; however, I am much more positive about that situation.

College is great but it is difficult with IBD because of your limited ability to do things... Going to class: yes, i have had to book it out to the bathroom in the middle of stressful (and TIMED) orgo and genetics exams. Going out to eat with friends? I am constantly googling menus ahead of time to find something suitable to eat (and I have also now because the annoying - Can I get "this" without "this" but add "that" please? HAHA, and i'm not usually picky about anything.) I'd say the toughest thing is that I am in the EPICENTER of an ongoing partying atmosphere. And while I do go out and drink very rarely, I honestly CANNOT keep up with it 4 days a week like my friends/roommates/classmates. Heck, I have a heck of a time keeping up with once a week sometimes... it messes up the whole system! Thankfully, there are some fun social situations where people don't care if you choose not to drink.. but in the college culture of constant drinking games and binge drinking, its often really hard. (and this is TOTALLY school-dependent, also. I know that next year people will be much more keen to just socially drink or go to a show instead of the straight "BINGEBINGEBINGE" mindset.)

All in all, it makes you realize who your friends are! It makes you find alternative ways to have fun.. which can be great! And... it also helps me to study a lot more, too!! Which is great; that is what we are here for!

Good luck, there's others out there struggling with the same thing, even if you cannot see them!! You will still have a GREAT and enjoyable college experience, despite IBD. Don't let anything stand in your way! (Also, if you contact your school, Im sure they have a special meals program that they can make you specific things. Its YOUR money... may as well fight to get what you want/need. haha, i did it for a semester. yeah, it was sort of awkward... getting "special" meals... but with the growing amount of ppl with a bajillion food allergies these days its nbd.) id get off the meal plan with a kitchen, asap though. choosing your own food=wayyyy helpful.

stay strong! :-)
21-year-old college student
5 years symptoms before diagnosed in '10

Formerly Lialda 4.8, now Asacol HD 4.8 (but flaring.)
Canasa 1000 mg, basically daily. (supposed to be tapering off)
Fish Oil, multivit, vit D

Flare starts with F for a reason.

Bacon Girl
Veteran Member


Date Joined May 2011
Total Posts : 5490
   Posted 4/5/2012 11:31 AM (GMT -6)   
ucfighter, i luckily was able to finish school with a good gpa and all my credits done. i started flaring badly in march 2011 and i only had one class along with my internship-25 hrs a week. i was able to get to the class every week and my internship boss was really understanding. i had to change my shift hours and come in when i wasn't in pain. i also did a lot of work from home. it was hard though because we had to have a certain number of hours at the actual faciliity so i would go 3-4 hrs at a time every day just to get them done. my major was in health and fitness so i had to teach a lot of fitness and nutrition classes. that ended up getting hard because i wasn't bubbly and had no energy. it's really hard to hide this disease for me because i always look phsyically gross when flaring- really skinny, sunken in eyes, bluish skin color, and bad posture. i am not working right now due to being in another flare. UC definitely affects my working capability and i'm thinking i'll have to go into a different field. i don't know of jobs where i can work from home with a health degree.
Joanna, 22
no meds at the moment. i am waiting to hear back from 2 hospitals for fecal transplant.
things i am taking now- earth and greens powder, psyllium husk, renew life probiotics, iron, selenium, vit d, and a multi vitamin
things i've tried- canasa supps, pred, 6mp, remicade, rowasa, lialda, cortico enemas, l-glutamine, vit e enema, VSL enema, aloe vera, slippery elm, n-acytel glucosamine
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