Slippery Elm Side Effect?

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Conquer UC
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Date Joined Jan 2012
Total Posts : 1210
   Posted 4/11/2012 6:18 PM (GMT -7)   
i've started taking slippery elm 4 days ago to help with tapering the enemas (also because the enemas were causing alot of irritation and swelling of hemmies) so i took it to help 'coat' and protect the mucosa. Well i've noticed an improvement however i've been going earlier at like 3 in the morning!!!

Ever since i started the slippery elm i would be woken up from sleep at about 3am (i usually go at 8am) and feel kinda heavy in the stomach -no urgency as such- and need to go. I try to ignore it and go back to sleep but the bloated feeling is too much and i end up going. Don't get me wrong i love the healing effects of slip elm but i NEED TO SLEEP!!!

Is there anything that can heal this disease without disruptive side effects? *sigh*

Am i the only one with this side effect? fyi i take about 1 -1.5 tablespoon of organic slippery elm powder and mix it up with boiling water. Then after it cools i glug it down. After i mix it it's a jelly/slimy consistency.
My BMs are soft and formed and normal looking. No blood. Which is why i don't want to stop taking it bc it seems to help.

Any suggestions/ideas? im now thinking of switching to psyllium but i don't think it has the same therpeutic potential as slip elm?
25 yo female Nutritionist
UC pancolitis dx April 2011 ~1 month after birth of my first child. Went into remission after a course of prednisone (hated the s/e esp psychological ones!) .
Maintenance: mesalazine 3g/d. Sacc Bouldarii, Benefibre. Non-iron Mv. Curcumin, Low Fodmaps, Glutenfree, ?red meat, ?tuna, no salmon-allergic, eggs max 6/week.
Coming out of a proctitis flare that started Jan '12

stereofidelic89
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Date Joined Sep 2011
Total Posts : 1989
   Posted 4/11/2012 9:09 PM (GMT -7)   
I'm guessing you are taking the Elm powder and not making a tea? If its a powder thats interesting that has a 'slimy' appeal, as does the tea, but if its tea I never ingest the actual herbs, just the tea.

Maybe its doing wonders for you, but its leaving a strong effect... consider lowering the dosage? And working your way up? If its making anything worse I would say stop it. Do you have a link to the brand of powder you are using?

At the very least, if you have outdoor allergies maybe the elm is what you are allergic to? I know I might be, but the tea always agreed with me anyhow.
College Senior, diagnosed severe Chrons/UC - Sept. 2011

Meds: 800mg asacol 3xdaily, NO more prednisone!
Dietary: Aloe Vera Juice, Multivitamin, L-Glutamine, Omega3 Fish Oil, Gluten-Free, VSL Probiotic
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

Remission achieved in february by the SCD!

Conquer UC
Veteran Member


Date Joined Jan 2012
Total Posts : 1210
   Posted 4/11/2012 9:40 PM (GMT -7)   
Stereo: hmm i never knew that you could have slippery elm without actually ingesting the slimy stuff. I make mine by mixing the powder (i use 'Soland organic slipper elm') with boiling water until the powder is all dissolved. It starts to gell almost immediately. Then once it's cooled a bit i drink it.
So what you are saying is that you can put the powder in a teabag and just steep it in boiling water and drinking the water? would that still help? i thought that slippery elm worked by coating the intestines with its 'slime'. So no slime no benefit. Or am i wrong?

Yes iam thinking about lowering the dose.. I think i may lower it to 1/2 a tablespoon and see how that goes.

Iam getting tested for allergies next week. Will be interesting to see what comes up!! but i have a feeling im allergic to pollen. because whenever the season changes i get bad headaches/lethargy/bowel upsets and achy feeling all over.

I just feel so meh about the whole thing...i always get excited when trying something new but im starting to just think that maybe this is how it is from now on...you know what i mean? but then i think no way im not settling for this. Urgh i don't know.
25 yo female Nutritionist
UC pancolitis dx April 2011 ~1 month after birth of my first child. Went into remission after a course of prednisone (hated the s/e esp psychological ones!) .
Maintenance: mesalazine 3g/d. Sacc Bouldarii, Benefibre. Non-iron Mv. Curcumin, Low Fodmaps, Glutenfree, ?red meat, ?tuna, no salmon-allergic, eggs max 6/week.
Coming out of a proctitis flare that started Jan '12

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1989
   Posted 4/12/2012 5:29 AM (GMT -7)   
I understand what you mean, but ooops no, you're taking your powder the right way, I think I jumbled my words, I just meant I get loose leaf herbs (slippery elm), steep the tea and strain it so that I drink the slimy part (but not the actual herbs), you're doing fine i'm sure!

But allergy testing may help you out a bit...

Maybe skip the bedtime dose for now? And instead take throughout the day.
College Senior, diagnosed severe Chrons/UC - Sept. 2011

Meds: 800mg asacol 3xdaily, NO more prednisone!
Dietary: Aloe Vera Juice, Multivitamin, L-Glutamine, Omega3 Fish Oil, Gluten-Free, VSL Probiotic
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

Remission achieved in february by the SCD!

JayGuitar
Regular Member


Date Joined Feb 2012
Total Posts : 211
   Posted 4/12/2012 6:21 PM (GMT -7)   
I really use the heck out of the elm and I have been for over a month. I love it and I have to say I really have felt great.
Thanks to InSoFla!

Anyway, that did happen with me at first, but things calmed down after a while. Give it a good three weeks or so. Occasionally it still happens, but I just jump up, go really quick and get back to bed.

I take 1 TBSP in boiling water along with a shake of cinnamon. That sets up to a porridge. I do that three times a day.
J
1200mg Magnesium; 2g Vit. C --
2 to 4 Nordic Naturals
2 B-Balance 100 caps.
2000 IU Vit. D-3
Canasa supp. at night
1-3 servings fermented veg per day
turmeric
Bellicon Rebounder 30-40 min/day

46&crashing
Regular Member


Date Joined Sep 2011
Total Posts : 499
   Posted 4/12/2012 7:22 PM (GMT -7)   
Definitely cut back on the amount. I started with 1 tsp 2 times daily. Then I read that anything less than a TABLESPOON was a waste so I upped mine to that amount. Found myself getting up with urgency and passing slime quite often. I cut back to a teaspoonful first thing in the morning and then again right before bed. Almost immediately stopped having to get up during the night.

Drop your dosage then gradually build it to the right amount for your body!

And just as an FYI.... I mix mine with a swig of cold water stir for a minute then chug.
DX: May 2011
Current meds: Imuran 75mg
Also on Prednisone 40 mg daily since 9/16 (can't get a successful taper that's why I had to start Imuran on 3/23)
L-Glutamine
Slippery Elm- 1 tsp 2 times daily
VSL#3 nightly

Was taking 3 Lialda daily since 9/11, but not much help. Stopped 3/23
And this too shall pass!

JayGuitar
Regular Member


Date Joined Feb 2012
Total Posts : 211
   Posted 4/12/2012 8:45 PM (GMT -7)   
I find that slime to be 100% soothing. Aside from just a touch of the runs, I have been completely satisfied.

Though I must say that I have had a couple of slimey accidents and I can't pass gas with full confidence.

Still, I couldn't be happier with what is going on with the elm.
J
1200mg Magnesium; 2g Vit. C --
2 to 4 Nordic Naturals
2 B-Balance 100 caps.
2000 IU Vit. D-3
Canasa supp. at night
1-3 servings fermented veg per day
turmeric
Bellicon Rebounder 30-40 min/day

Conquer UC
Veteran Member


Date Joined Jan 2012
Total Posts : 1210
   Posted 4/12/2012 10:06 PM (GMT -7)   
Thanks SO MUCH everyone for your replies; i feel so much better now *long exhale* :)
I thought i was going into a flare! i wasn't sure what was happening. But yesterday i reduced the dose to about 3 teaspoons and i got up at 6 in the morning instead. So yeh im gonna increase it gradually; what dose should i aim for/build up to?

But i gotta say i LOVE it, too. Ever since i've started it i've noticed my BMs are more formed and easier to come out. Also my hemmies are so much better. I found that the mesalazine 4g enema every night for the last 2.5 months is starting to really irritate me more than help at this stage; i'm not sure why coz they really helped in the beginning. But i think they did the job and now they have started to irritate the tissue down there and i need to find an alernative. Slippery elm just sounds the best. But yeh has anyone else experienced this with the enemas? where they really help at first but after continued use night after night they give you rectal pain and irritate hemorrhoids and make you go to the loo more often?

@JAYGUITAR can i ask what is the reasoning behind you taking 1200mg of magnesium? and which type (eg magnesium sulfate, magnesium citrate, magnesium chloride..etc) do you take?
25 yo female Nutritionist
UC pancolitis dx April 2011 ~1 month after birth of my first child. Went into remission after a course of prednisone (hated the s/e esp psychological ones!) .
Maintenance: mesalazine 3g/d. Sacc Bouldarii, Benefibre. Non-iron Mv. Curcumin, Low Fodmaps, Glutenfree, ?red meat, ?tuna, no salmon-allergic, eggs max 6/week.
Coming out of a proctitis flare that started Jan '12

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 4/13/2012 9:12 AM (GMT -7)   
I have not tried slippery elm yet and find this thread of interest... Well, to be sure, I think that years back, when my ten year superremission ended, I tried some HFS concoction of various substances including slippery elm as one of manyitems in a cocktail... And it didnt go down well. But perhaps it was not the slippery elm that caused issues.

Has anyone reading this reacted horribly to aloe juice but reacted well to slippery elm? i know that they are like apples and oranges, but aloe vera juice has actuallyput me into flares. I am by no means doing all that great right now and am seriously thinking about trying slippery elm- if I do, needless to say I would begin with the tiniest dose.

JayGuitar
Regular Member


Date Joined Feb 2012
Total Posts : 211
   Posted 4/13/2012 4:50 PM (GMT -7)   
ConquerUC-
I started taking the Mag and B to combat high blood pressure and that combo did the trick better than the meds I was on at the time without the med side effects. The Mag and B were recommended to me by a naturopath.

I take Triple Magnesium Complex made by Swanson- the triple mags are mag oxide, mag citrate, and mag aspartate.

I have been taking it for a number of years and have found a good balance for me bowel wise. I don't have any bowel issues from the level I am taking.

Jay
1200mg Magnesium; 2g Vit. C --
2 to 4 Nordic Naturals
2 B-Balance 100 caps.
2000 IU Vit. D-3
Canasa supp. at night
1-3 servings fermented veg per day
turmeric
Bellicon Rebounder 30-40 min/day

Sunny76
Regular Member


Date Joined Apr 2012
Total Posts : 33
   Posted 4/13/2012 7:13 PM (GMT -7)   
Hey Conquer UC,
  I'm very new here and looking for help!  Saw that you are a nutritionist w/ UC!  I need ideas to try, as I am a teacher who had to leave my classroom, go into a different aspect of education due to the interruptions.  Been suffering with this unknown but finally diagnosed culprit for many, many years.  No one around my area seemed to be knowledgeable. Finally found a doctor who helps and actually listens. Would love to know how difficult the SCD has been for others, if Gluten-free and / or lactose free has made much difference, and hear ideas for what TO try.  Is eating now a regimen of self-prepared foods and no eating out?  Also, how has UC affected others ability to continue your profession?  I'm at a loss as I LOVE to teach; however, this disease . . . well, you all know what I mean.  Leaving a group of babies while visiting the "john" 7 or 8 times breeches our 'forseeability' clause as to what could happen in our absence.  Any suggestions?

Mackster
Veteran Member


Date Joined May 2007
Total Posts : 768
   Posted 4/13/2012 7:27 PM (GMT -7)   
I'm not sure if you need to use boiling water and make it into a gel. No such instructions come with the powder that's bought in 1lb bags.
You get a clue on the recommended dosage indicated on the branded capsule bottles.   Most of them call for 3 or 4 caps swallowed down with warm water taken 2-3 times a day.   You would have to conclude that 3-4 caps = a little over a teaspoon.
It's obvious that the warm water is to break down the capsule casing quicker and the powder is supposed to form a gel-like substance in your stomach.  As on a similar earlier thread to this, one poster said that there is absolutely no need to swallow slippery elm when it has the consistancy of cat vomit (sorry-not my words).  His reasoning was probably because there is no reason to 'coat' the upper end of your digestive tract when UC is all down at the very bottom.
Personally, I take a heaped tsp in about 4-5oz of warm juice (pom/acai) at least once a day, though I'm going to increase it to twice a day as I think it's actually helping.  I stir it up and drink it down rapidly before it gets time to gel.
 
69m Dx'd may'06 (prob had since'04)
Meds:
150mg azathioprine-stopped jul28-11
.05mg Lorazapan nightly to help sleep
on and off pred last 5 yrs
started 25mg MTX/folic acid Oct'11-stopped after 3 mo.
started 15mg pred mar4'12
1st infsn. Remicade mar8'12
supplements:
2000mg vit D daily
800mg calcium daily
Slip. elm daily
Psyllium seed and/or metamucil/benfiber daily

46&crashing
Regular Member


Date Joined Sep 2011
Total Posts : 499
   Posted 4/13/2012 8:32 PM (GMT -7)   
Waiting for it to gel is way too gross for me to get down! A couple ounces of cool water, teaspoonful of the SE, quick stir then chug.

If you start Slippery Elm, make sure you get a good quality organic powder. The first time I bought it from a "vitamin" store. It was like drinking dirt. horrible tasting stuff. I ordered my next batch online from a company recommended by someone on this site. It came as nice fluffy powder and is much nicer going down, but it gels alot quicker.
DX: May 2011
Current meds: Imuran 75mg
Also on Prednisone 40 mg daily since 9/16 (can't get a successful taper that's why I had to start Imuran on 3/23)
L-Glutamine
Slippery Elm- 1 tsp 2 times daily
VSL#3 nightly

Was taking 3 Lialda daily since 9/11, but not much help. Stopped 3/23
And this too shall pass!

JayGuitar
Regular Member


Date Joined Feb 2012
Total Posts : 211
   Posted 4/13/2012 8:40 PM (GMT -7)   
I get my slippery elm powder from Mountain Rose Herbs in a one pound bag.

I put 1 TBSP in a cup along with with a shake of cinnamon for flavor and add either a cup of boiling water or a small amount of cool filtered tap water.

With the boiling water version, the mixture quickly sets up to a porridge and I eat it once it has cooled off enough to not be burned.

With the cool, filtered tap water version, I just stir it until everything is moistened and eat/drink it down. In this cold process, it also quickly takes the form of a gel.

I think this has to do with the amount of slippery elm powder to water ratio as well as the quality of the slippery elm powder.
J
1200mg Magnesium; 2g Vit. C --
2 to 4 Nordic Naturals
2 B-Balance 100 caps.
2000 IU Vit. D-3
Canasa supp. at night
1-3 servings fermented veg per day
turmeric
Bellicon Rebounder 30-40 min/day

SS0000
Veteran Member


Date Joined Feb 2012
Total Posts : 682
   Posted 4/13/2012 9:33 PM (GMT -7)   
Sunny76 said...
Hey Conquer UC,
  I'm very new here and looking for help!  Saw that you are a nutritionist w/ UC!  I need ideas to try, as I am a teacher who had to leave my classroom, go into a different aspect of education due to the interruptions.  Been suffering with this unknown but finally diagnosed culprit for many, many years.  No one around my area seemed to be knowledgeable. Finally found a doctor who helps and actually listens. Would love to know how difficult the SCD has been for others, if Gluten-free and / or lactose free has made much difference, and hear ideas for what TO try.  Is eating now a regimen of self-prepared foods and no eating out?  Also, how has UC affected others ability to continue your profession?  I'm at a loss as I LOVE to teach; however, this disease . . . well, you all know what I mean.  Leaving a group of babies while visiting the "john" 7 or 8 times breeches our 'forseeability' clause as to what could happen in our absence.  Any suggestions?
 
 
SUNNY, personally my diet helps me, i willsay though that during a flare , all foods feel pretty terrible, but some like gluten,potatoes and dairy & chocolate make it WAY worse.  the SCD is quite a regimin but i can see the concept , i dont eat out , unless i am feeling 100% and am VERY careful. a naturopathic/alternative dr or some books could help you get started on some diets http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm 
as for my career .... :( impossible at this stage for me too many bathroom trips, not a close enough bathroom  etc, very sad . good luck sunny

diagnosid 2008 , with minor "flares" up untill 2011...
currently on 40 mg pred
cannot take any mesalamine meds
flare since dec 2011 - current
cannot stop rectal bleeding or urgency
gluten free/ min to no dairy, probitics,
interested in LDN & slippery elm

Conquer UC
Veteran Member


Date Joined Jan 2012
Total Posts : 1210
   Posted 4/14/2012 10:33 PM (GMT -7)   
Sunny: i can tell you that any diet, while it will help keep you in remission longer and minimise the symptoms, won't stop UC coming back all together -in my opinion anyway. I think that a couple of diet strategies will DEFINITELY improve your symptoms, keep you in remission longer, and make your life a lot better. I advise you to try the low FODMAPS diet. here is the link to buy the book:
http://www.med.monash.edu.au/ehcs/research/docs/booklet-final-order-form.pdf

If you can find a dietitian that does it that would be even better; Go see her.

Gluten-free helps alot (however a low FODMAPS diet is essentially gluten-free).

Good luck :)
25 yo female Nutritionist
UC pancolitis dx April 2011 ~1 month after birth of my first child. Went into remission after a course of prednisone (hated the s/e esp psychological ones!) .
Maintenance: mesalazine 3g/d. Sacc Bouldarii, Benefibre. Non-iron Mv. Curcumin, Low Fodmaps, Glutenfree, ?red meat, ?tuna, no salmon-allergic, eggs max 6/week.
Coming out of a proctitis flare that started Jan '12

crosses
Regular Member


Date Joined Jan 2014
Total Posts : 31
   Posted 1/22/2014 11:01 AM (GMT -7)   
Hi , I have come across slipper elm supplements, have any of you tried taking it in capsule form?

I also heard that slipper elm can interact with prenisone where the pred does not work as well. So i have yet to try the slippery elm.

my colitis is in an active state, where there is blood, but my trips to the washroom are manageable and it is not ruining my daily life.
I am tapering off pred, now at 7.5 mg. The stools are not the most formed, and I am unsure if slippery elm is a good idea to take, as it seems it can cause looser stools.

Would you take slippery elm, if you were me in my current state?
-Currently on 10 mg of pred and tapering off 2.5mg a week
-asacol has made things worse in the past
-been to hospital once and received 3 blood transfusions
-currently in a tiny flare (eliminated diarrhea with diet)
-supps : vit d3, probiotic (up to 3x/day), folic acid, CoQ10/Omega3
- need to find an iron supp and calcium supp that does not cause diarrhea and flares

Conquer UC
Veteran Member


Date Joined Jan 2012
Total Posts : 1210
   Posted 1/24/2014 4:07 PM (GMT -7)   
I would recommnd psyllium seed powder or RS in he form of unmodified potato starch over slippery elm.

dgDot
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/21/2014 1:36 PM (GMT -7)   
After reading blogs, I am writing to describe the way I prepare Slippery Elm tea powder. The temperature of the water makes a difference in the way I enjoy it. I put about a 1/3 cup of water in microwave on high for about 39 seconds. I then add about 1/3 to 1/2 tsp of slippery elm powder. I then drink it warm for the most pleasure. Too hot of water makes a gel. I don't mind drinking the gel if it is cold. I will sometimes make gel to apply topically.
Since I am unable to take meds or vitamins by mouth, slippery elm is my life saver. I had spastic colon pain one time, took it, an hour later I had to remember that I had been in pain. Keep in mind that we absorb 60-80% of what we put on our skin. I have to take Vit E and magnesium by rubbing it on my skin. I wonder if slippery elm has any health benefits by taking it by douche or enema. One day, I'll try it.
It also has been great for viruses, diarrhea, constipation, pain, internal bleeding (Urinary Tract Infection, proctitis, and other areas, bronchitis, and nausea. I think boiled raw cranberries juice is better for bronchitis since it has a natural enzyme to clear out the bronchials. Since I am 66 and had these health problems since I was 20, I have had a lot of experiences with these issues.

ewafromwarsaw
Veteran Member


Date Joined Jun 2013
Total Posts : 1219
   Posted 11/22/2016 12:23 PM (GMT -7)   
do u think that drinking a cup of slippery elm (one teaspoon for one cup of boiling water) every day may cause any side effects?
Ewa, 24 yrs old from Warsaw
Left-sided colitis, diagnosed in September 2012
Current meds: 2x2 Asamax (500 mg) and Salofalk enemas (twice a week)
Mutaflor or VSL#3

Paisley&Harper
New Member


Date Joined Aug 2017
Total Posts : 14
   Posted 8/30/2017 8:23 AM (GMT -7)   
Any suggestions on how to take slippery elm! I open two capsules and put in water and drank it and soon as I did my stomach started hurting. I didn't know this was a side affect. I know taking that way you in jest more quickly. Should I just take one and let system used to it or just forget about it. Anybody had a bad experience like this please let me know.

Paisley&Harper
New Member


Date Joined Aug 2017
Total Posts : 14
   Posted 9/1/2017 8:20 AM (GMT -7)   
Is slippery elm suppose to make your stomach hurt. I opened two capsules and emptied in a cup and pored water over it and drank it and as soon as I did my stomach started to hurt. I just read that somebody posted that you are not suppose to injest the herbs. I guess I took it wrong. I don't have powder just capsules. Any suggestions what I did wrong. I'm afraid to take anymore after this.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11046
   Posted 9/1/2017 9:03 AM (GMT -7)   
I'm no expert with slippery elm, but commonsense dictates that if it hurts your stomach then don't take it anymore! Anyone can have an adverse reaction to anything whether it's a medication or supplement.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Invisible Illness: If I looked as bad as I feel then I'd scare your children!

Post Edited (iPoop) : 9/1/2017 10:06:41 AM (GMT-6)


Paisley&Harper
New Member


Date Joined Aug 2017
Total Posts : 14
   Posted 9/1/2017 9:22 AM (GMT -7)   
I was wondering what kind of sleepy elm powder everyone is using and where did you buy it. I tried the capsules and they didn't work for me I thought maybe trying the powder would soothe my stomach.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 11046
   Posted 9/1/2017 9:46 AM (GMT -7)   
Have you considered not taking it? A bad reaction is a bad reaction, and there's no sugar-coating it! There's a million other UC treatments to try...

What other treatments do you take for your UC? What are your current symptoms like?
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Invisible Illness: If I looked as bad as I feel then I'd scare your children!
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