Noticed from your signature that you are now taking Imuran. When did you start and is it helping with tapering side effects of pred or just with UC symptoms. Why did you decide Imuran? Hope you are feeling good :)
I started imuran about
3 months ago. I started at 100mg and was then bumped up to 150. Wish I could say it was helping! I got down to 10mg of prednisone and symptoms came roaring back. I had mild symptoms on the higher doses of pred.; they were bearable. I am back up at 20mg although dr wants me at 30. I have been on it so long, that I hate being on it longer.
I am actually heading to the GI tomorrow since it isn't working yet. They want to discuss other med options. They also want to do some stool studies. A lot of joint pain started in my knees and feet this weekend so that is another reason for the visit. I am not sure if I am ready to give up on it just yet, but at the same time, really don't want to be on prednisone any more. I did just start a gluten free, dairy free, sugar free, caffeine free diet just to see if I could find any triggers. First couple of days, things seemed to be going well and then tonight... The bathroom a lot!
As far as why I chose imuran... I am unable to tolerate and just rectal meds have done nothing. I don't kow why I chose it over 6mp. I think I went with it because I have a family member who use it for their surgery (transplant) patients and felt positive about
it. I have had no side effects with taking it. Just wish it was working!
Good luck to you! It is such a hard disease anyway, but really hard with kids. I have 2 little girls and they spend a to of time in the bathroom with me :(