I am kinda at a loss right now. The GI wanted me to go on Remicade and while I am sure it works for some people, I just do not want to go down that route. I have only been diagnosed with UC since 2/14 this year and have already had four stays in the hospital (first three were to get the flare under control the last one was reaction to Imuran). I suggested to GI to try the mesalines or something less serious and he said I would probably end up back in the hospital. While those meds did not work previously, I was also in the middle of a major flare. My symptoms are under control now and just don't want to go crazy with the meds especially after the Imuran/Lung reaction.
His compromise was to have another colonoscopy to see how severe the UC was. If it is not bad then we could try the lesser meds. If it is bad, as he suspects, he will reccomend Remicade.
Since this has happened I really began considering surgery as option and skip the Remicade. I am a 35 year old with a wife and 6 yr. old daughter. The thought of figthing through flares, meds, and possible long term effects of the disease scares the crap at of me. Selfiously i have maxed out my insurance deductible so the surgery would be free. My work is very understanding of my situation but who knows what the situation will be 3-5 yrs from now if it ends up surgery is my only option.
My other concern is while I am on 20 mg of prednisone, I have fairly normal, consistent BMs. I hate thinking I would take this drastic step without really knowing how UC effects my life. I know diet and supplements work for some people but quite honestly (and again being selfious), not sure how much time I would want to give going down that route (my diet is not horrible also but I do like to eat food). Cost of surgery would be MUCH more expensive next year. To be clear, the cost should not be the only deciding factor either.
I could get a second opinion but that could also take a couple months (is definately an option though...). Any thoughts or advice would be appreciated.